Fowler Christopher, Baas Linda S
The University of Texas at Arlington, Arlington, TX, USA.
Nephrol Nurs J. 2006 Mar-Apr;33(2):173-4, 179-86.
A sample of patients with chronic kidney disease on maintenance hemodialysis participated in a study to explore the relationship between illness perception and quality of life. Illness perception was examined based on the Common-Sense Model of Illness as described by Leventhal. Forty-two participants completed the Revised Illness Perception Questionnaire (IPQ-R), the Index of Well-being (IWB) and a brief demographic form. All of the subscales of the IPQ-R and the IWB demonstrated adequate reliability (alpha levels > or = .70) except for the treatment control subscale (alpha = .46). More perceived consequences of kidney disease and higher scores on the emotional representation scale were negatively correlated with scores on the IWB. Future research is needed to assess the influence of factors such as coping strategies on illness representations and on well-being. Nephrology nurses are in an optimal position to identify the illness perceptions of patients on chronic hemodialysis and can introduce specific coping mechanisms to enhance overall well-being. As well nephrology nurses can function as part of the overall health care team to identify the resources available to minimize the perceived consequences of chronic kidney disease.
一组维持性血液透析的慢性肾病患者参与了一项研究，以探讨疾病认知与生活质量之间的关系。根据Leventhal描述的疾病常识模型对疾病认知进行了检查。42名参与者完成了修订后的疾病认知问卷（IPQ-R）、幸福感指数（IWB）和一份简短的人口统计学表格。除治疗控制子量表（α = 0.46）外，IPQ-R和IWB的所有子量表均显示出足够的信度（α水平≥0.70）。更多的肾病感知后果和情感表征量表上的高分与IWB得分呈负相关。未来需要进行研究，以评估应对策略等因素对疾病表征和幸福感的影响。肾病护士最有条件识别慢性血液透析患者的疾病认知，并可以引入特定的应对机制来提高整体幸福感。此外，肾病护士可以作为整体医疗团队的一部分，确定可用资源，以尽量减少慢性肾病的感知后果。
