Ng Jia Hwei, Vialet Jaclyn, Diefenbach Michael A
Division of Kidney Diseases and Hypertension, Donald and Barbara Zucker School of Medicine at Hofstra/Northwell, Great Neck, New York, USA
Clinical Medical Library, North Shore University Hospital, Manhasset, New York, USA.
BMJ Open. 2021 Feb 16;11(2):e042298. doi: 10.1136/bmjopen-2020-042298.
Patient education is a crucial component in the management of chronic kidney disease (CKD); however, many education programmes do not tailor to patients' disease-related belief and emotional reactions. According to Leventhal's self-regulation model, such beliefs and reactions, known as illness perceptions, are a part of patients' understanding of their disease and treatment-related actions. The existing research of illness perception in the field of nephrology has been heterogenous in terms of study outcomes and in study population; and the evidence of how illness perceptions affect behavioural and decisional outcomes is limited. This scoping review aims to map and summarise the evidence of published literature on illness perception among patients with CKD not yet treated by dialysis and kidney failure.
This study bases its approach on Joanna Brigg's Institute Guidelines on scoping review methods. The search strategy was developed together with a medical information specialist. Searches will be performed on acceptance of publication in the following databases: PubMed, EMBASE, PsycINFO via Ovid, Scopus and the Cumulative Index to Nursing and Allied Health Literature. Searches will be run without incorporating a date restriction in order to capture content from the databases' inception to present day. Search terms including 'illness perception', 'kidney disease' and 'kidney failure' will be screened in titles and abstracts. Two independent researchers will screen the abstracts and full text for full eligibility. We will include studies focusing on illness perception of patients with CKD with estimated glomerular filtration rate <60 mL/min/1.73 m, kidney failure or recipients of kidney transplant. We will exclude patients <18 years of age, patients with acute kidney injury and non-English articles. All demographic data, study design and study findings will be collected and analysed using a data abstraction tool.
This study does not require internal review board approval. We will present the findings of this scoping review in a peer-reviewed journal.
患者教育是慢性肾脏病（CKD）管理的关键组成部分；然而，许多教育项目并未针对患者与疾病相关的信念和情绪反应进行调整。根据莱文索尔的自我调节模型，这种信念和反应，即疾病认知，是患者对其疾病及治疗相关行为理解的一部分。肾脏病领域现有关于疾病认知的研究在研究结果和研究人群方面存在异质性；并且关于疾病认知如何影响行为和决策结果的证据有限。本范围综述旨在梳理和总结尚未接受透析和肾衰竭治疗的CKD患者中已发表文献关于疾病认知的证据。
本研究基于乔安娜·布里格斯研究所关于范围综述方法的指南开展。搜索策略由医学信息专家共同制定。将在以下数据库进行搜索，待文章被收录发表后进行：通过Ovid检索的PubMed、EMBASE、PsycINFO，Scopus以及护理与健康相关文献累积索引。搜索将不设日期限制，以获取数据库自创建以来至今的内容。将在标题和摘要中筛选包括“疾病认知”“肾脏疾病”和“肾衰竭”在内的检索词。两名独立研究人员将筛选摘要和全文以确定完全符合纳入标准。我们将纳入聚焦于估算肾小球滤过率<60 mL/min/1.73 m²的CKD患者、肾衰竭患者或肾移植受者疾病认知的研究。我们将排除年龄<18岁的患者、急性肾损伤患者和非英文文章。将使用数据提取工具收集和分析所有人口统计学数据、研究设计和研究结果。
本研究无需内部审查委员会批准。我们将在同行评审期刊上呈现本范围综述的结果。
