Roe David, Lachman Max
Institute for Health, Health Care Policy, and Aging Research, Rutgers University, New Jersey, USA.
Isr J Psychiatry Relat Sci. 2005;42(4):223-30.
Over the last two decades there has been growing interest in the subjective experiences of persons with severe mental illness (SMI). Despite this interest, little research has been carried out to understand whether and how such experiences are related to the course of SMI. In addition, few psychotherapeutic and rehabilitation interventions have been developed especially for persons with SMI that seriously take these persons' subjective experiences into account. In the present paper we discuss why the use and investigation of the subjective experience of people with SMI has been neglected, and we point out the potential importance of this experience. We then review the growing literature that focuses on the subjective experience of (1) the illness, (2) the self, and (3) the self as influenced by the social context of persons with SMI. Finally, the implications of this review for rehabilitation, recovery and research are discussed.
在过去二十年里，人们对重度精神疾病（SMI）患者的主观体验越来越感兴趣。尽管有这种兴趣，但为了解这些体验是否以及如何与重度精神疾病的病程相关而开展的研究却很少。此外，专门为重度精神疾病患者开发的、认真考虑这些患者主观体验的心理治疗和康复干预措施也很少。在本文中，我们讨论了为何重度精神疾病患者的主观体验的运用和研究一直被忽视，并指出了这种体验的潜在重要性。然后，我们回顾了越来越多关注以下方面主观体验的文献：（1）疾病，（2）自我，以及（3）受重度精神疾病患者社会环境影响的自我。最后，讨论了这一综述对康复、康复和研究的影响。
