• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

探索原住民在临终关怀期间因治疗而搬迁的经历。

Exploring Aboriginal people's experience of relocation for treatment during end-of-life care.

作者信息

McGrath Pam

机构信息

International Programme for Psycho-social Health Research, Central Queensland University, Brisbane Office, PO Box 1307, Kenmore, Brisbane, Queensland 4069, Australia.

出版信息

Int J Palliat Nurs. 2006 Mar;12(3):102-8. doi: 10.12968/ijpn.2006.12.3.20692.

DOI:10.12968/ijpn.2006.12.3.20692
PMID:16628174
Abstract

AIM

to explore indigenous peoples' experience of relocation for medical treatment during end-of-life care.

METHODS

the data were collected from 72 qualitative interviews conducted throughout the regional, rural and remote areas of the Northern Territory, Australia, with Aboriginal patients and carers and the health professionals who cared for them.

RESULTS

relocation for indigenous peoples is a frightening experience. There are a myriad of fears including: the fear of leaving home, especially for people who had never been away from their home lands; the fear of dis-empowerment associated with leaving the support of family networks; fears about hospital environments and 'high-tech' treatments; fear of cultural alienation for familiar foods and ways of being; fear of travel; fear of loneliness; fear of language and communication barriers; financial fears; and fear of dying away from the homeland.

CONCLUSION

the findings demonstrate the strong need for building-up local palliative care services and raise significant questions about the cultural appropriateness of the Western biomedical rationale for relocation during end-of-life care.

摘要

目的

探讨原住民在临终关怀期间因就医而搬迁的经历。

方法

数据收集自对澳大利亚北领地地区、农村和偏远地区的72次定性访谈,访谈对象包括原住民患者及其护理人员以及照顾他们的卫生专业人员。

结果

对原住民而言,搬迁是一段可怕的经历。存在无数恐惧,包括:害怕离开家乡,尤其是那些从未离开过故土的人;害怕因离开家庭网络的支持而失去权力;对医院环境和“高科技”治疗的恐惧;因熟悉的食物和生活方式而害怕文化疏离;害怕旅行;害怕孤独;害怕语言和沟通障碍;经济担忧;以及害怕死在远离家乡的地方。

结论

研究结果表明,迫切需要建立当地的姑息治疗服务,并对临终关怀期间搬迁的西方生物医学理论的文化适宜性提出了重大质疑。

相似文献

1
Exploring Aboriginal people's experience of relocation for treatment during end-of-life care.探索原住民在临终关怀期间因治疗而搬迁的经历。
Int J Palliat Nurs. 2006 Mar;12(3):102-8. doi: 10.12968/ijpn.2006.12.3.20692.
2
'I don't want to be in that big city; this is my country here': research findings on Aboriginal peoples' preference to die at home.“我不想死在那个大城市;这里才是我的故乡”:关于原住民倾向于在家中离世的研究发现。
Aust J Rural Health. 2007 Aug;15(4):264-8. doi: 10.1111/j.1440-1584.2007.00904.x.
3
'The biggest worry..': research findings on pain management for Aboriginal peoples in Northern Territory, Australia.“最大的担忧……”:关于澳大利亚北领地原住民疼痛管理的研究发现
Rural Remote Health. 2006 Jul-Sep;6(3):549. Epub 2006 Jul 10.
4
The case for Aboriginal Health Workers in palliative care.
Aust Health Rev. 2007 Aug;31(3):430-9. doi: 10.1071/ah070430.
5
"They should come out here ...": research findings on lack of local palliative care services for Australian aboriginal people.“他们应该来这里……”:关于澳大利亚原住民缺乏当地姑息治疗服务的研究结果。
Am J Hosp Palliat Care. 2007 Apr-May;24(2):105-13. doi: 10.1177/1049909106297069.
6
Remote area nurses' perceptions of the enablers and barriers for delivering end-of-life care in remote Australia to Aboriginal people who choose to pass away on their traditional lands.偏远地区护士对在澳大利亚偏远地区为选择在传统土地上离世的原住民提供临终关怀的促成因素和障碍的看法。
Rural Remote Health. 2021 Jul;21(3):6485. doi: 10.22605/RRH6485. Epub 2021 Jul 5.
7
Outreach and improved access to specialist services for indigenous people in remote Australia: the requirements for sustainability.为澳大利亚偏远地区的原住民提供外展服务并改善其获得专科服务的机会:可持续性的要求。
J Epidemiol Community Health. 2002 Jul;56(7):517-21. doi: 10.1136/jech.56.7.517.
8
Considering Aboriginal palliative care models: the challenges for mainstream services.考量原住民姑息治疗模式:主流服务面临的挑战。
Rural Remote Health. 2013 Apr-Jun;13(2):2339. Epub 2013 May 8.
9
Young Aboriginal people's engagement with STI testing in the Northern Territory, Australia.澳大利亚北领地原住民年轻人参与性传播感染检测
BMC Public Health. 2020 Apr 6;20(1):459. doi: 10.1186/s12889-020-08565-0.
10
Passing on wisdom: exploring the end-of-life wishes of Aboriginal people from the Midwest of Western Australia.传承智慧:探寻西澳大利亚中西部原住民的临终愿望。
Rural Remote Health. 2019 Nov;19(4):5444. doi: 10.22605/RRH5444. Epub 2019 Nov 30.

引用本文的文献

1
Consenting rather than choosing. A qualitative study on overseas patients' decision to undergo hematopoietic stem cell transplantation.同意而非选择。一项关于海外患者接受造血干细胞移植决策的定性研究。
Cancer Med. 2024 Jan;13(1):e6934. doi: 10.1002/cam4.6934. Epub 2024 Jan 9.
2
Understanding the Experiences of Rural- and Remote-Living Patients Accessing Sub-Acute Care in Queensland: A Qualitative Descriptive Analysi.了解昆士兰州农村和偏远地区患者获得亚急性护理的经历:一项定性描述性分析
J Multidiscip Healthc. 2022 Dec 23;15:2945-2955. doi: 10.2147/JMDH.S391738. eCollection 2022.
3
Dialysis attendance patterns and health care utilisation of Aboriginal patients attending dialysis services in urban, rural and remote locations.
城市、农村和偏远地区接受透析服务的原住民患者的透析就诊模式和医疗保健利用情况。
BMC Health Serv Res. 2022 Feb 24;22(1):251. doi: 10.1186/s12913-022-07628-9.
4
Do remote dialysis services really cost more? An economic analysis of hospital and dialysis modality costs associated with dialysis services in urban, rural and remote settings.远程透析服务真的更贵吗?对城市、农村和偏远地区透析服务相关的医院和透析模式成本的经济分析。
BMC Health Serv Res. 2021 Jun 17;21(1):582. doi: 10.1186/s12913-021-06612-z.
5
Seldom heard voices: a meta-narrative systematic review of Aboriginal and Torres Strait Islander peoples healthcare experiences.少闻其声:原住民和托雷斯海峡岛民医疗保健体验的元叙事系统评价。
Int J Equity Health. 2020 Dec 14;19(1):222. doi: 10.1186/s12939-020-01334-w.
6
Causal Attributions in an Australian Aboriginal Family With Marfan Syndrome: A Qualitative Study.一个患有马凡氏综合征的澳大利亚原住民家庭中的因果归因:一项定性研究。
Front Genet. 2020 May 7;11:461. doi: 10.3389/fgene.2020.00461. eCollection 2020.
7
Opportunities for improving patient experiences among medical travellers from Canada's far north: a mixed-methods study.改善来自加拿大偏远北方的医疗旅行者就医体验的机会:一项混合方法研究。
BMJ Open. 2019 Dec 4;9(12):e030885. doi: 10.1136/bmjopen-2019-030885.
8
Indigenous compared with non-Indigenous Australian patients at entry to specialist palliative care: Cross-sectional findings from a multi-jurisdictional dataset.与进入专科姑息治疗的非土著澳大利亚患者相比,土著澳大利亚患者:多司法辖区数据集的横断面研究结果。
PLoS One. 2019 May 2;14(5):e0215403. doi: 10.1371/journal.pone.0215403. eCollection 2019.
9
Delay in commencement of palliative care service episodes provided to Indigenous and non-Indigenous patients: cross-sectional analysis of an Australian multi-jurisdictional dataset.延迟开始提供给原住民和非原住民患者的姑息治疗服务:对澳大利亚多司法管辖区数据集的横断面分析。
BMC Palliat Care. 2018 Dec 22;17(1):130. doi: 10.1186/s12904-018-0380-7.
10
Dying alone: An Indigenous man's journey at the end of life.孤独离世:一位原住民男子的生命终途之旅。
Can Fam Physician. 2018 Sep;64(9):667-668.