McGrath Pam
International Programme for Psycho-social Health Research, Central Queensland University, Brisbane Office, PO Box 1307, Kenmore, Brisbane, Queensland 4069, Australia.
Int J Palliat Nurs. 2006 Mar;12(3):102-8. doi: 10.12968/ijpn.2006.12.3.20692.
to explore indigenous peoples' experience of relocation for medical treatment during end-of-life care.
the data were collected from 72 qualitative interviews conducted throughout the regional, rural and remote areas of the Northern Territory, Australia, with Aboriginal patients and carers and the health professionals who cared for them.
relocation for indigenous peoples is a frightening experience. There are a myriad of fears including: the fear of leaving home, especially for people who had never been away from their home lands; the fear of dis-empowerment associated with leaving the support of family networks; fears about hospital environments and 'high-tech' treatments; fear of cultural alienation for familiar foods and ways of being; fear of travel; fear of loneliness; fear of language and communication barriers; financial fears; and fear of dying away from the homeland.
the findings demonstrate the strong need for building-up local palliative care services and raise significant questions about the cultural appropriateness of the Western biomedical rationale for relocation during end-of-life care.
探讨原住民在临终关怀期间因就医而搬迁的经历。
数据收集自对澳大利亚北领地地区、农村和偏远地区的72次定性访谈,访谈对象包括原住民患者及其护理人员以及照顾他们的卫生专业人员。
对原住民而言,搬迁是一段可怕的经历。存在无数恐惧,包括:害怕离开家乡,尤其是那些从未离开过故土的人;害怕因离开家庭网络的支持而失去权力;对医院环境和“高科技”治疗的恐惧;因熟悉的食物和生活方式而害怕文化疏离;害怕旅行;害怕孤独;害怕语言和沟通障碍;经济担忧;以及害怕死在远离家乡的地方。
研究结果表明,迫切需要建立当地的姑息治疗服务,并对临终关怀期间搬迁的西方生物医学理论的文化适宜性提出了重大质疑。