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成年智障人士的生活质量:生活质量评估工具

Quality of life in adults with an intellectual disability: the Evaluation of Quality of Life Instrument.

作者信息

Nota L, Soresi S, Perry J

机构信息

University of Padua, Padova, Italy.

出版信息

J Intellect Disabil Res. 2006 May;50(Pt 5):371-85. doi: 10.1111/j.1365-2788.2006.00785.x.

DOI:10.1111/j.1365-2788.2006.00785.x
PMID:16629930
Abstract

BACKGROUND

The construct of quality of life (QoL) has been the focus of a great deal of recent research and has been operationalized in the assessment of the effectiveness of biomedical and rehabilitative interventions. Consequently, the effective measurement of QoL has become a relevant issue. QoL assessment should take account of both objective life conditions and reported satisfaction with those conditions, and should recognize that QoL has multiple domains. There is also evidence to suggest that it is useful to supplement such assessments with the evaluations of significant others within a multidimensional assessment perspective.

METHODS

The current study describes a further stage of testing and refinement of the Evaluation of Quality of Life Instrument (EQLI), which was designed to elicit from staff of health and social care services assessments of the level of satisfaction experienced by adults with an intellectual disability. Specifically, the EQLI's internal consistency, and construct, convergent and discriminant validity were analysed.

RESULTS

The EQLI appears to be a psychometrically valid measure for collecting data on the levels of satisfaction which, according to health and social services staff, might be experienced by individuals with an intellectual disability who attend residential institutions and community-based day centres. The factor analyses supported a three-factor structure for the EQLI and reliability estimates of scores on the three factors were in the moderate to high range. The data collected supported convergent and discriminant validity.

CONCLUSIONS

The results indicate that the EQLI is an effective measure for gaining staff perceptions of individuals who may be at risk of dissatisfaction with various QoL domains. The EQLI is as an instrument which, within a multidimensional assessment, could contribute to the identification of areas of user dissatisfaction with services.

摘要

背景

生活质量(QoL)这一概念一直是近期大量研究的焦点,并已应用于生物医学和康复干预效果的评估中。因此,对生活质量进行有效测量已成为一个相关问题。生活质量评估应兼顾客观生活条件和对这些条件的报告满意度,并应认识到生活质量具有多个维度。也有证据表明,在多维评估视角下,用重要他人的评价来补充此类评估是有用的。

方法

本研究描述了生活质量评估工具(EQLI)测试和完善的进一步阶段,该工具旨在从卫生和社会护理服务人员那里获取对成年智障人士体验到的满意度水平的评估。具体而言,分析了EQLI的内部一致性、结构效度、收敛效度和区分效度。

结果

EQLI似乎是一种心理测量有效的测量工具,可用于收集有关据卫生和社会服务人员称,入住寄宿机构和社区日间中心的智障人士可能体验到的满意度水平的数据。因素分析支持了EQLI的三因素结构,三个因素得分的可靠性估计处于中到高范围。收集到的数据支持收敛效度和区分效度。

结论

结果表明,EQLI是一种有效的测量工具,可用于获取工作人员对可能对各个生活质量领域不满的个人的看法。EQLI作为一种工具,在多维评估中,可有助于识别服务使用者不满意的领域。

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