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“妈妈医生”的医嘱:一项基于社区的探索性研究,探讨父母对孩子多动症症状的自我护理反应。

What "Dr. Mom" ordered: a community-based exploratory study of parental self-care responses to children's ADHD symptoms.

作者信息

Bussing Regina, E Koro-Ljungberg Mirka, Williamson Pamela, Gary Faye A, Wilson Garvan Cynthia

机构信息

Psychiatry, University of Florida, Box 100234, UFHC, Gainesville, FL 32610 0234, USA.

出版信息

Soc Sci Med. 2006 Aug;63(4):871-82. doi: 10.1016/j.socscimed.2006.03.014. Epub 2006 Apr 27.

Abstract

Little is known about family initiated self-care interventions in response to symptoms of attention deficit/hyperactivity disorder (ADHD), and how self-care may co-exist with professional treatments. This paper explores parental self-care strategies for children with hyperactivity or attention problems, and examines factors and domains that influence their use from the mixed method perspective. As part of a longitudinal cohort study of ADHD detection and service use, caregivers of a representative US community sample of 266 children at high risk for ADHD completed a questionnaire that assessed five self-care strategies (behavior modification, coping, diet, over-the-counter medication use and religious practices), and made open-ended inquiry about discipline changes in response to behavioral concerns. Questionnaire responses were analyzed using logistic regression approaches. Open-ended answers were open coded; secondary analysis followed Spradley's model of domain analysis. Quantitative findings showed that behavior modification was the most commonly tried self-care strategy, followed by coping, diet, and religious practices. Over-the-counter trial was least common. The parents of professionally treated children were more likely to have employed behavior modification, coping strategies and over-the-counter medications than the parents of untreated children. Two-thirds of parents had changed their disciplinary action within three domains that were identified through qualitative analysis, including changes related to (a) the prevention of disciplinary problems (e.g., sustain eye contact, activation, consistency, clear instructions), (b) the solution of disciplinary problems (e.g., time-outs; privilege removal), and (c) parental coping associated with disciplinary problems (e.g., control own emotions, become less judgmental and more tolerant, and develop more appropriate expectations). These findings suggest that self-care strategies are commonly employed and appear to co-exist with professional treatment. Therefore, healthcare providers should actively explore parents' use of such strategies as some of them may interfere with prescribed treatments (e.g., over-the-counter) or absorb parental resources without likely benefit (e.g., diet).

摘要

关于家庭发起的针对注意力缺陷多动障碍(ADHD)症状的自我护理干预措施,以及自我护理如何与专业治疗共存,目前所知甚少。本文从混合方法的角度探讨了针对多动或注意力问题儿童的家长自我护理策略,并研究了影响这些策略使用的因素和领域。作为一项关于ADHD检测和服务使用的纵向队列研究的一部分,来自美国一个具有代表性社区样本的266名ADHD高危儿童的照料者完成了一份问卷,该问卷评估了五种自我护理策略(行为矫正、应对方式、饮食、非处方药物使用和宗教活动),并就针对行为问题所做的纪律调整进行了开放式询问。问卷回复采用逻辑回归方法进行分析。开放式答案进行了开放编码;二次分析遵循斯普拉德利的领域分析模型。定量研究结果表明,行为矫正是最常尝试的自我护理策略,其次是应对方式、饮食和宗教活动。非处方药物尝试最少见。接受专业治疗儿童的家长比未接受治疗儿童的家长更有可能采用行为矫正、应对策略和非处方药物。通过定性分析确定了三个领域,三分之二的家长在这三个领域内改变了他们的纪律措施,这些改变包括:(a)预防纪律问题(例如,保持眼神接触、活跃、一致、明确指示),(b)解决纪律问题(例如,暂停、取消特权),以及(c)与纪律问题相关的家长应对方式(例如,控制自己的情绪、减少评判、增加宽容、形成更合适的期望)。这些发现表明,自我护理策略被广泛采用,并且似乎与专业治疗共存。因此,医疗保健提供者应积极探索家长对这些策略的使用情况,因为其中一些策略可能会干扰规定的治疗(例如,非处方药物),或者消耗家长资源却可能没有益处(例如,饮食)。

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