Keir Stephen T, Guill Ann Bebe, Carter Karen E, Friedman Henry S
The Tug McGraw Center for Quality of Life/Supportive Care Research, The Preston Robert Tisch Brain Tumor Center at Duke University Medical Center, P.O. Box 3624, Durham, NC 27710, USA.
Support Care Cancer. 2006 Dec;14(12):1213-9. doi: 10.1007/s00520-006-0087-9. Epub 2006 May 30.
Despite advances in diagnosis, treatment, and management of brain tumors, a brain tumor (BT) can significantly disrupt a person's life and create stress. To design effective stress reduction interventions, it is essential to have an understanding of the beliefs, past experiences, and preferences concerning stress reduction techniques and programs among patients with BTs.
Using a convenience sample, 60 adult patients with primary BTs completed the study questionnaire. Demographic information and patient preferences were collected using self-reported measures, medical information was collected via medical chart review, and stress was assessed using Perceived Stress Scale.
Sixty-three percent of the population sampled experienced elevated levels of stress. Eighty-six percent wanted to learn about techniques to reduce stress and 78% believed stress reduction techniques can help reduce stress. However, only 56% indicated they would be able to participate in a stress reduction program twice a week and only 40% of the sample wanted to participate in the various stress reduction programs presented to them in this study. Furthermore, only 26% of the sample actually wanted to receive information about stress reduction programs and only 25% would participate in programs using the various modes presented.
The results of this study clearly indicate that patients with BTs experience stress. Furthermore, the data is encouraging in regard to the patients' desire to learn about stress reduction techniques. However, the lack of interest in actually receiving information and the inability to envision themselves participating in programs present a major challenge.
尽管在脑肿瘤的诊断、治疗和管理方面取得了进展，但脑肿瘤仍会严重扰乱患者的生活并造成压力。为了设计有效的减压干预措施，了解脑肿瘤患者关于减压技术和项目的信念、过往经历及偏好至关重要。
采用便利抽样法，60名患有原发性脑肿瘤的成年患者完成了研究问卷。通过自我报告措施收集人口统计学信息和患者偏好，通过病历审查收集医疗信息，并使用感知压力量表评估压力。
抽样人群中有63%经历了高水平的压力。86%的人希望了解减压技术，78%的人认为减压技术有助于减轻压力。然而，只有56%的人表示他们能够每周参加两次减压项目，且样本中只有40%的人希望参加本研究中向他们介绍的各种减压项目。此外，样本中只有26%的人实际希望获得有关减压项目的信息，只有25%的人会参加以各种方式呈现的项目。
本研究结果清楚地表明，脑肿瘤患者会经历压力。此外，关于患者学习减压技术的愿望，数据是令人鼓舞的。然而，对实际获取信息缺乏兴趣以及无法设想自己参与项目，这构成了一项重大挑战。
