Penson Richard T, Partridge Rosamund A, Shah Muhammad A, Giansiracusa David, Chabner Bruce A, Lynch Thomas J
Department of Medicine, Division of Hematology-Oncology, Palliative Care Service, Massachusetts General Hospital, Boston, Massachusetts, USA.
Oncologist. 2005 Feb;10(2):160-9. doi: 10.1634/theoncologist.10-2-160.
Shortly before his death in 1995, Kenneth B. Schwartz, a cancer patient at Massachusetts General Hospital (MGH) founded The Kenneth B. Schwartz Center at MGH. The Schwartz Center is a nonprofit organization dedicated to supporting and advancing compassionate health care delivery, which provides hope to the patient and support to caregivers and encourages the healing process. The center sponsors the Schwartz Center Rounds, a monthly multidisciplinary forum where caregivers reflect on important psychosocial issues faced by patients, their families, and their caregivers, and gain insight and support from fellow staff members. For many, cancer is synonymous with death. Fearing death is a rational response. For too long, medicine has ignored this primeval fear. Increasingly, clinicians recognize and address end-of-life issues, facing patients' and our own emotional vulnerabilities in order to connect and explore problems and fears. Listening and learning from the patient guides us as we acknowledge much of the mystery that still surrounds the dying process. Rarely is there a simple or right answer. An empathetic response to suffering patients is the best support. Support is vital in fostering the adjustment of patients. A silent presence may prove more helpful than well-meant counsel for many patients. Through an examination of eight caregiver narratives of their patients' experiences, the role of the health care provider in the dying process, particularly in regard to challenging fear, is reviewed.
1995年去世前不久,马萨诸塞州综合医院(MGH)的癌症患者肯尼斯·B·施瓦茨在MGH创立了肯尼斯·B·施瓦茨中心。施瓦茨中心是一个非营利组织,致力于支持和推进富有同情心的医疗服务,为患者提供希望,为护理人员提供支持,并促进康复过程。该中心主办施瓦茨中心座谈会,这是一个每月一次的多学科论坛,护理人员在此反思患者、其家人和护理人员面临的重要社会心理问题,并从其他工作人员那里获得见解和支持。对许多人来说,癌症是死亡的代名词。恐惧死亡是一种理性反应。长期以来,医学一直忽视这种原始的恐惧。越来越多的临床医生认识到并处理临终问题,直面患者以及我们自身的情感脆弱性,以便联系并探究问题和恐惧。在我们承认围绕死亡过程仍存在诸多谜团时,倾听患者并向他们学习会引导我们前行。很少有简单或正确的答案。对痛苦患者的共情反应是最好的支持。支持对于促进患者的调整至关重要。对于许多患者来说,默默陪伴可能比善意的劝告更有帮助。通过审视八位护理人员讲述的关于其患者经历的故事,回顾了医疗服务提供者在死亡过程中的角色,尤其是在应对恐惧方面的角色。