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患有唐氏综合征幼儿的母亲的压力轨迹。

Stress trajectories in mothers of young children with Down syndrome.

作者信息

Most D E, Fidler D J, Booth-LaForce C, Kelly J

机构信息

School of Education, Colorado State University, Fort Collins, CO 80523, USA.

出版信息

J Intellect Disabil Res. 2006 Jul;50(Pt 7):501-14. doi: 10.1111/j.1365-2788.2006.00796.x.

Abstract

BACKGROUND

In this study, we investigated the early development of stress in mothers of children with Down syndrome, compared with mothers of children with developmental disabilities of mixed aetiologies. Growth modelling analyses were used to explore: (1) whether mothers of children with Down syndrome demonstrated distinct patterns of stress during their children's early development, compared with mothers of children with other developmental disabilities; and (2) whether there was a relation between child behavioural characteristics and the level and rate of change in stress observed in each population.

METHOD

The stress trajectories of mothers of young children with Down syndrome (n = 25) and a mixed-aetiology comparison group (n = 49) were estimated, using growth modelling on data collected at ages of 15, 30 and 45 months.

RESULTS

On average, stress in the mixed comparison group was higher at Time 1 and remained unchanged over time, while stress in the Down syndrome group was lower at Time 1 but increased steadily. After taking diagnostic group membership into account, more advanced cognitive-linguistic functioning and lower levels of maladaptive behaviours at all time points were associated with lower levels of maternal stress. CONCLUSIONS; These findings suggest that the cognitive-linguistic and behavioural trajectory observed in early development in Down syndrome may contribute to the changes in maternal stress levels observed throughout these early years. Implications for developing targeted and time- sensitive family interventions for families of children with Down syndrome are discussed.

摘要

背景

在本研究中,我们调查了唐氏综合征患儿母亲压力的早期发展情况,并与病因混杂的发育障碍患儿的母亲进行了比较。采用生长模型分析来探讨:(1)与其他发育障碍患儿的母亲相比,唐氏综合征患儿的母亲在其子女早期发育过程中是否表现出不同的压力模式;(2)每个群体中观察到的儿童行为特征与压力水平及变化率之间是否存在关联。

方法

利用在15、30和45个月龄时收集的数据进行生长模型分析,估计唐氏综合征幼儿母亲(n = 25)和病因混杂的对照组(n = 49)的压力轨迹。

结果

平均而言,混杂对照组在时间1时压力较高,且随时间保持不变,而唐氏综合征组在时间1时压力较低,但稳步上升。在考虑诊断组类别后,所有时间点上更高级的认知语言功能和较低水平的适应不良行为与较低的母亲压力水平相关。结论:这些发现表明,唐氏综合征早期发育中观察到的认知语言和行为轨迹可能导致了这些早期阶段母亲压力水平的变化。讨论了对唐氏综合征患儿家庭开展有针对性且对时间敏感的家庭干预措施的意义。

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