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本文引用的文献

1
Self-perceived quality of life of children and adolescents with physical disabilities in Hong Kong.香港肢体残疾儿童及青少年的自我感知生活质量
Qual Life Res. 2005 Mar;14(2):415-23. doi: 10.1007/s11136-004-0728-8.
2
Meaning of life for adolescents with a physical disability in Korea.韩国身体残疾青少年的生活意义
J Adv Nurs. 2003 Jul;43(2):145-55; discussion 155-7. doi: 10.1046/j.1365-2648.2003.02689_1.x.
3
Relationships among musculoskeletal impairments and functional health status in ambulatory cerebral palsy.非卧床型脑瘫患者肌肉骨骼损伤与功能健康状况之间的关系。
J Pediatr Orthop. 2003 Jul-Aug;23(4):535-41.
4
Can parents rate their child's health-related quality of life? Results of a systematic review.父母能否对其子女与健康相关的生活质量进行评分?一项系统评价的结果。
Qual Life Res. 2001;10(4):347-57. doi: 10.1023/a:1012253723272.
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Prevention of disability on grounds of suffering.基于痛苦的残疾预防。
J Med Ethics. 2001 Dec;27(6):380-2. doi: 10.1136/jme.27.6.380.
6
Outcome measures in pediatric neurology: why do we need them?
J Child Neurol. 2000 Dec;15(12):775-80. doi: 10.1177/088307380001501201.
7
Long-term care for people with developmental disabilities: a critical analysis.
Health Soc Work. 2000 Aug;25(3):181-9. doi: 10.1093/hsw/25.3.181.
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Developmental outcome of neonatal intensive care: what questions are we asking?
Curr Opin Pediatr. 2000 Apr;12(2):116-22. doi: 10.1097/00008480-200004000-00005.
9
Quality of life and developmental disabilities.生活质量与发育障碍
Dev Med Child Neurol. 1998 Jul;40(7):435. doi: 10.1111/j.1469-8749.1998.tb15392.x.
10
Child/adolescent behavioral and emotional problems: implications of cross-informant correlations for situational specificity.儿童/青少年行为与情绪问题:多渠道信息相关性对情境特异性的影响
Psychol Bull. 1987 Mar;101(2):213-32.

身体残疾青少年的自我感知生活质量——一项初步研究。

Self-perceived quality of life for adolescents with physical disabilities - a preliminary study.

作者信息

Ju Yun-Huei, Lee Shwn-Jen, Lo Sing Kai, Wang Hui-Yi, Chu Hsiao-Chieh, Lin Jau-Hong

机构信息

Faculty of Physical Therapy, Kaohsiung Medical University, and Department of Rehabilitation, Kaohsiung Medical University Hospital, Kaohsiung, Taiwan.

出版信息

Kaohsiung J Med Sci. 2006 Jun;22(6):271-6. doi: 10.1016/S1607-551X(09)70311-0.

DOI:10.1016/S1607-551X(09)70311-0
PMID:16793564
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11917934/
Abstract

The purpose of this study was to explore the effect of physical disabilities (PD) on the quality of life (QoL) of adolescents aged from 10 to 18 years. Sixty-three adolescents with PD (aged 14.9 +/- 2.4 years) from primary (5th grade or above) to high schools in Kaohsiung City volunteered to participate in this research; 282 children without disability (aged 13.8 +/- 2.3 years) attending schools in the same geographical region were recruited as controls. The Student Version of the Comprehensive Quality of Life Scale was used in this study. This is a multidimensional self-report, global measure of subjective and objective QoL. Multivariate analysis of variance revealed that the two groups were significantly different in objective QoL (F = 11.53, p < 0.001). Material wellbeing was substantially lower in the PD group when compared to the control group. In contrast, domains such as productivity, safety, and emotion were higher in the PD group. Among the subjective scales, the PD group showed higher productivity and better emotion when compared to the control group. No significant correlation was observed between objective and subjective overall QoL scores (r = 0.20, p = 0.12) in the PD group. These findings showed that subjects with PD in regular schools demonstrated different patterns in objective and subjective QoL when compared to those without PD. Both subjective and objective domains are important when measuring QoL of adolescents with PD.

摘要

本研究旨在探讨身体残疾(PD)对10至18岁青少年生活质量(QoL)的影响。来自高雄市小学(五年级及以上)至高中的63名患有PD的青少年(年龄14.9±2.4岁)自愿参与本研究;招募了同一地理区域内282名无残疾儿童(年龄13.8±2.3岁)作为对照。本研究使用了生活质量综合量表学生版。这是一种多维自我报告,用于全面衡量主观和客观生活质量。多变量方差分析显示,两组在客观生活质量方面存在显著差异(F = 11.53,p < 0.001)。与对照组相比,PD组的物质幸福感显著较低。相反,PD组在生产力、安全和情感等方面得分较高。在主观量表中,与对照组相比,PD组表现出更高的生产力和更好的情绪。在PD组中,客观和主观总体生活质量得分之间未观察到显著相关性(r = 0.20,p = 0.12)。这些结果表明,与无PD的青少年相比,普通学校中有PD的青少年在客观和主观生活质量方面表现出不同的模式。在测量患有PD的青少年的生活质量时,主观和客观领域都很重要。