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通过部落对研究的监管来保护纳瓦霍人。

Protecting the Navajo People through tribal regulation of research.

作者信息

Brugge Doug, Missaghian Mariam

机构信息

Department of Public Health and Family Medicine, Tufts University School of Medicine, 136 Harrison Avenue, Boston, MA 02111, USA.

出版信息

Sci Eng Ethics. 2006 Jul;12(3):491-507. doi: 10.1007/s11948-006-0047-2.

Abstract

This essay explores the process and issues related to community collaborative research that involves Native Americans generally, and specifically examines the Navajo Nation's efforts to regulate research within its jurisdiction. Researchers need to account for both the experience of Native Americans and their own preconceptions about Native Americans when conducting research about Native Americans. The Navajo Nation institutionalized an approach to protecting members of the nation when it took over Institutional Review Board (IRB) responsibilities from the US Indian Health Service (IHS) in 1996. While written regulations for the Navajo Nation IRB are not dissimilar, and in some ways are less detailed than those of the IHS IRB, in practice the Navajo Nation allows less flexibility. Primary examples of this include not allowing expedited review and requiring prepublication review of all manuscripts. Because of its broad mandate, the Navajo Nation IRB may also require review of some projects that would not normally be subject to IRB approval, including investigative journalism and secondary research about Navajo People that does not involve direct data collection from human subjects.

摘要

本文探讨了与涉及美国原住民的社区合作研究相关的过程和问题,并特别考察了纳瓦霍族在其管辖范围内规范研究的努力。研究人员在开展关于美国原住民的研究时,需要兼顾美国原住民的经历以及他们自身对美国原住民的先入之见。1996年,纳瓦霍族从美国印第安卫生服务局(IHS)接手机构审查委员会(IRB)职责时,将一种保护本族成员的方法制度化了。虽然纳瓦霍族IRB的书面规定并无不同,且在某些方面比IHS IRB的规定细节更少,但在实际操作中,纳瓦霍族给予的灵活性较小。主要例子包括不允许快速审查以及要求对所有手稿进行发表前审查。由于其广泛的授权,纳瓦霍族IRB可能还会要求审查一些通常无需IRB批准的项目,包括调查性新闻报道以及关于纳瓦霍人的二次研究(不涉及直接从人类受试者收集数据)。

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