Eldh Ann Catrine, Ekman Inger, Ehnfors Margareta
Orebro University, Sweden.
Nurs Ethics. 2006 Sep;13(5):503-14. doi: 10.1191/0969733006nej898oa.
This study explored patients' experiences of participation and non-participation in their health care. A questionnaire-based survey method was used. Content analysis showed that conditions for patient participation occurred when information was provided not by using standard procedures but based on individual needs and accompanied by explanations, when the patient was regarded as an individual, when the patient's knowledge was recognized by staff, and when the patient made decisions based on knowledge and needs, or performed self-care. Thus, to provide conditions for true patient participation, professionals need to recognize each patient's unique knowledge and respect the individual's description of his or her situation rather than just inviting the person to participate in decision making.
本研究探讨了患者参与和不参与医疗保健的经历。采用了基于问卷的调查方法。内容分析表明，当信息不是通过标准程序而是根据个体需求并伴有解释来提供时，当患者被视为个体时，当工作人员认可患者的知识时，以及当患者基于知识和需求做出决策或进行自我护理时，患者参与的条件就会出现。因此，为了提供真正的患者参与条件，专业人员需要认识到每个患者独特的知识，并尊重个人对其情况的描述，而不仅仅是邀请患者参与决策。
