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临终研究设计中的倡导:对一家重症监护病房的人种志研究。

Advocacy at end-of-life research design: an ethnographic study of an ICU.

作者信息

Sorensen Roslyn, Iedema Rick

机构信息

Centre for Health Services Management, Faculty of Nursing, Midwifery & Health, University of Technology, 11A The Terraces, Broadway, Sydney, NSW 2006, Australia.

出版信息

Int J Nurs Stud. 2007 Nov;44(8):1343-53. doi: 10.1016/j.ijnurstu.2006.07.019. Epub 2006 Sep 15.

DOI:10.1016/j.ijnurstu.2006.07.019
PMID:16979173
Abstract

BACKGROUND

Clinicians worldwide are being called upon to reconcile accountability for patient outcomes with the resources they consume. In the case of intensive care, contradictory pressures can arise in decisions about continuing treatment where benefit is diminishing. As concern grows about the cost effectiveness of treatment at end-of-life, nursing expertise and advocacy become significant factors in decision making.

OBJECTIVES

To explore the potential for a nursing advocacy role within a specific regime of nursing practice: end-of-life care; specifically to examine the concept of nursing advocacy from the literature, to consider its application in the workplace and to assess the capacity for nurses to advocate for people who die in institutions such as intensive care units.

DESIGN

Open-ended interviews with nurse managers and educators (4), palliative care specialists (2), chaplain (1), medical managers (2), intensives (7); focus groups with nurses (4 focus groups and 29 participants); patient case studies (13); observation of family conferences (6 conferences and 15 participants); observation of ward rounds (3 ward rounds and 11 participants). Total number of participants: 84.

SETTING

A large ICU in a principal referral and teaching hospital in Sydney, Australia.

PARTICIPANTS

Clinical staff within, and clinical and non-clinical caregivers external to the unit.

METHOD

Qualitative, ethnographic study.

RESULTS

Spurious economic imperatives, primacy given to medical intervention, conflict between medical and nursing clinicians about patient management and absence of nursing operational autonomy and organizational authority, impede the opportunity for nurses to define and enact an advocacy role.

CONCLUSIONS

If nurses are to be effective patient advocates at end-of-life, they will need to develop clear criteria within which nursing assessments of patient status can be framed, the specialized skills to manage the non-medical needs of dying people and the organizational and political skills to negotiate changing clinical practice and workplace relations.

摘要

背景

全球临床医生都面临着既要对患者治疗结果负责,又要合理使用资源的挑战。在重症监护领域,当继续治疗的益处逐渐减少时,关于是否继续治疗的决策可能会产生相互矛盾的压力。随着人们对临终治疗成本效益的关注度不断提高,护理专业知识和支持在决策过程中变得至关重要。

目的

探讨在特定护理实践模式——临终关怀中,护理支持角色的潜力;具体而言,从文献中审视护理支持的概念,思考其在工作场所的应用,并评估护士为在重症监护病房等机构中去世的患者提供支持的能力。

设计

对护士经理和教育工作者(4名)、姑息治疗专家(2名)、牧师(1名)、医疗经理(2名)、重症监护医生(7名)进行开放式访谈;与护士进行焦点小组讨论(4个焦点小组,共29名参与者);患者案例研究(13个);观察家庭会议(6次会议,共15名参与者);观察查房(3次查房,共11名参与者)。参与者总数:84名。

地点

澳大利亚悉尼一家主要的转诊和教学医院的大型重症监护病房。

参与者

该病房内的临床工作人员以及病房外的临床和非临床护理人员。

方法

定性的人种学研究。

结果

虚假的经济需求、对医疗干预的过度重视、医疗和护理临床医生在患者管理方面的冲突以及护理操作自主权和组织权威的缺失,阻碍了护士界定并履行支持角色的机会。

结论

如果护士要在临终时成为有效的患者支持者,他们需要制定明确的标准,据此对患者状况进行护理评估,掌握满足临终患者非医疗需求的专业技能,以及具备协商改变临床实践和工作场所关系的组织和政治技能。

相似文献

1
Advocacy at end-of-life research design: an ethnographic study of an ICU.临终研究设计中的倡导:对一家重症监护病房的人种志研究。
Int J Nurs Stud. 2007 Nov;44(8):1343-53. doi: 10.1016/j.ijnurstu.2006.07.019. Epub 2006 Sep 15.
2
Beyond profession: nursing leadership in contemporary healthcare.超越职业范畴:当代医疗保健中的护理领导力
J Nurs Manag. 2008 Jul;16(5):535-44. doi: 10.1111/j.1365-2834.2008.00896.x.
3
Patient advocacy and advance care planning in the acute hospital setting.急症医院环境中的患者权益倡导与预立医疗计划
Aust J Adv Nurs. 2007 Jun-Aug;24(4):29-36.
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Practice of expert critical care nurses in situations of prognostic conflict at the end of life.重症护理专家在临终预后冲突情况下的实践。
Am J Crit Care. 2006 Sep;15(5):480-9; quiz 490.
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The withdrawal of life support in adult intensive care: an evaluative review of the literature.成人重症监护中生命支持的撤除:文献评估综述
Nurs Crit Care. 2002 Jul-Aug;7(4):176-84.
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Redefining accountability in health care: managing the plurality of medical interests.重新定义医疗保健中的问责制:管理多元医疗利益
Health (London). 2008 Jan;12(1):87-106. doi: 10.1177/1363459307083699.
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Being an intensive care nurse related to questions of withholding or withdrawing curative treatment.作为一名重症监护护士,涉及到停止或撤销治疗的问题。
J Clin Nurs. 2007 Jan;16(1):203-11. doi: 10.1111/j.1365-2702.2006.01427.x.
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Factors that enable or complicate end-of-life transitions in critical care.在重症监护中促成或使临终过渡复杂化的因素。
Am J Crit Care. 2005 Nov;14(6):513-21.
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End-of-life care in the intensive care unit: the Irish Ethicus data.重症监护病房中的临终关怀:爱尔兰Ethicus数据。
Crit Care Resusc. 2006 Dec;8(4):315-20.
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End-of-life care in the intensive care unit: a challenge for nurses.重症监护病房中的临终关怀:护士面临的一项挑战。
Am J Crit Care. 2001 Jul;10(4):230-7.

引用本文的文献

1
Integrity at end of life in the intensive care unit: a qualitative study of nurses' views.重症监护病房临终时的诚信:护士观点的定性研究
Ann Intensive Care. 2021 Feb 5;11(1):23. doi: 10.1186/s13613-021-00802-y.
2
Nursing Roles and Strategies in End-of-Life Decision Making in Acute Care: A Systematic Review of the Literature.急性护理中临终决策的护理角色与策略:文献系统综述
Nurs Res Pract. 2011;2011:527834. doi: 10.1155/2011/527834. Epub 2011 Oct 2.
3
Emotional knowing in nursing practice: In the encounter between life and death.
护理实践中的情感认知:在生死相遇中。
Int J Qual Stud Health Well-being. 2010 Jul 13;5(2). doi: 10.3402/qhw.v5i2.5367.