• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

唇腭裂儿童及青少年心理社会功能的自我报告。

Self-reports of psychosocial functioning among children and young adults with cleft lip and palate.

作者信息

Hunt Orlagh, Burden Donald, Hepper Peter, Stevenson Mike, Johnston Chris

机构信息

School of Dentistry, Queen's University Belfast, Belfast, Northern Ireland.

出版信息

Cleft Palate Craniofac J. 2006 Sep;43(5):598-605. doi: 10.1597/05-080.

DOI:10.1597/05-080
PMID:16986986
Abstract

OBJECTIVE

A cross-sectional study was employed to determine the psychosocial effects of cleft lip and/or palate among children and young adults, compared with a control group of children and young adults without cleft lip and palate.

PARTICIPANTS

The study comprised 160 children and young adults with cleft lip and/or palate and 113 children and young adults without cleft lip and/or palate. All participants were between 8 and 21 years of age.

OUTCOME MEASURES

Psychological functioning (anxiety, self-esteem, depression, and behavioral problems) was assessed using validated psychological questionnaires. Happiness with facial appearance was rated using a visual analog scale. Social functioning, including experience of teasing/bullying and satisfaction with speech, was assessed using a semistructured interview.

RESULTS

Participants with cleft lip and/or palate reported greater behavioral problems (p < .001) and more symptoms of depression (p < .01); they were teased more often (p < .001) and were less happy with their facial appearance (p < .01) and speech (p < .001), compared with controls. There were no significant difference between subjects with cleft lip and/or palate and subjects without cleft lip and/or palate in terms of anxiety (p > .05) or self-esteem (p > .05). Having been teased was a significant predictor of poor psychological functioning, more so than having a cleft lip and/or palate per se (p < .001).

CONCLUSIONS

Teasing was greater among participants who had cleft lip and/ or palate and it was a significant predictor of poorer psychosocial functioning. Children and young adults with cleft lip and/or palate require psychological assessment, specifically focusing on their experience of teasing, as part of their routine cleft care.

摘要

目的

采用横断面研究方法,确定唇腭裂患儿及青少年与无唇腭裂的儿童及青少年对照组相比的心理社会影响。

参与者

该研究包括160名唇腭裂患儿及青少年和113名无唇腭裂的儿童及青少年。所有参与者年龄在8至21岁之间。

结果测量

使用经过验证的心理问卷评估心理功能(焦虑、自尊、抑郁和行为问题)。使用视觉模拟量表对面部外观满意度进行评分。使用半结构化访谈评估社会功能,包括被取笑/欺负的经历和对言语的满意度。

结果

与对照组相比,唇腭裂患儿及青少年报告有更多的行为问题(p <.001)和更多的抑郁症状(p <.01);他们更经常被取笑(p <.001),对面部外观(p <.01)和言语(p <.001)的满意度更低。唇腭裂患儿及青少年与无唇腭裂的儿童及青少年在焦虑(p>.05)或自尊(p>.05)方面没有显著差异。被取笑是心理功能差的一个重要预测因素,比唇腭裂本身更能预测(p <.001)。

结论

唇腭裂参与者遭受的取笑更多,且是心理社会功能较差的一个重要预测因素。唇腭裂患儿及青少年需要进行心理评估,特别是关注他们被取笑的经历,作为其常规腭裂护理的一部分。

相似文献

1
Self-reports of psychosocial functioning among children and young adults with cleft lip and palate.唇腭裂儿童及青少年心理社会功能的自我报告。
Cleft Palate Craniofac J. 2006 Sep;43(5):598-605. doi: 10.1597/05-080.
2
Parent reports of the psychosocial functioning of children with cleft lip and/or palate.唇腭裂患儿心理社会功能的家长报告
Cleft Palate Craniofac J. 2007 May;44(3):304-11. doi: 10.1597/05-205.
3
[Psychosocial adjustment in children with a cleft lip and/or palate].[唇腭裂患儿的心理社会调适]
Ned Tijdschr Geneeskd. 2009;153:B352.
4
Self concept of the cleft lip and or palate child.唇腭裂患儿的自我概念
Cleft Palate J. 1979 Apr;16(2):171-6.
5
Making sense of the cleft. Young adults' accounts of growing up with a cleft and deviant speech.理解唇腭裂。年轻成人讲述成长过程中的唇腭裂和言语障碍。
J Health Psychol. 2011 Jan;16(1):22-30. doi: 10.1177/1359105310367529. Epub 2010 Aug 13.
6
Social life aspects of young adults with cleft lip and palate: grounded theory approach.唇腭裂青年成年人的社交生活方面:扎根理论方法
Acta Odontol Scand. 2009;67(2):122-8. doi: 10.1080/00016350902720888.
7
Assessment of patients' level of satisfaction with cleft treatment using the Cleft Evaluation Profile.使用腭裂评估量表评估患者对腭裂治疗的满意度。
Cleft Palate Craniofac J. 2007 May;44(3):292-303. doi: 10.1597/05-151.
8
A psychosocial study of Icelandic individuals with cleft lip or cleft lip and palate.一项针对冰岛唇裂或唇腭裂患者的社会心理研究。
Cleft Palate J. 1987 Apr;24(2):152-7.
9
Psychological study of cleft palate children with or without cleft lip by kinetic family drawing.通过动态家庭绘画对有或没有唇裂的腭裂儿童进行心理学研究。
J Craniomaxillofac Surg. 2000 Dec;28(6):373-9. doi: 10.1054/jcms.2000.0160.
10
Self-reported social, speech, and facial concerns and personality adjustment of adolescents with cleft lip and palate.唇腭裂青少年自我报告的社交、言语和面部问题及性格调适
Cleft Palate J. 1983 Apr;20(2):108-12.

引用本文的文献

1
Development and Clinical Efficacy of the Application for Articulation Therapy-Thai (AAT-T) for Thai Children With Cleft Lip and Palate.泰国唇腭裂儿童发音治疗应用程序(AAT-T)的开发与临床疗效
Clin Exp Dent Res. 2025 Aug;11(4):e70194. doi: 10.1002/cre2.70194.
2
Normative CLEFT-Q Data From the General Dutch Population.来自荷兰普通人群的标准化唇腭裂问卷(CLEFT-Q)数据。
J Craniofac Surg. 2024 Nov 21;36(3):907-11. doi: 10.1097/SCS.0000000000010882.
3
Evaluating quality of life changes in patients with cleft lip or palate: a mixed method pre- and postsurgical analysis in Karachi.
评估唇腭裂患者生活质量的变化:卡拉奇的一项手术前后的混合方法分析
BMC Oral Health. 2024 Dec 19;24(1):1509. doi: 10.1186/s12903-024-05293-4.
4
Children with facial differences experience deficits in emotion skills.面部存在差异的儿童在情绪技能方面存在缺陷。
Emotion. 2025 Apr;25(3):621-632. doi: 10.1037/emo0001432. Epub 2024 Oct 10.
5
Metformin lotion promotes scarless skin tissue formation through AMPK activation, TGF-β1 inhibition, and reduced myofibroblast numbers.二甲双胍乳剂通过激活 AMPK、抑制 TGF-β1 以及减少肌成纤维细胞数量来促进无疤痕皮肤组织的形成。
PLoS One. 2024 Sep 27;19(9):e0311147. doi: 10.1371/journal.pone.0311147. eCollection 2024.
6
Beyond the face: An interdisciplinary evaluation of satisfaction with appearance in young people with orofacial clefts.面部之外:对面部裂隙青少年外观满意度的跨学科评估
iScience. 2024 Aug 21;27(9):110738. doi: 10.1016/j.isci.2024.110738. eCollection 2024 Sep 20.
7
Guidance to develop a multidisciplinary, international, pediatric registry: a systematic review.指导制定多学科、国际化、儿科登记研究的系统综述
Orphanet J Rare Dis. 2023 Sep 21;18(1):296. doi: 10.1186/s13023-023-02901-4.
8
Patient Reported Outcome Following the Skoog Unilateral Cleft Lip Repair among Adults- a Long-Term Cohort Study and Comparison to a Non-cleft Population.成人 Skoog 单侧唇裂修复术后患者报告结局——一项长期队列研究,并与非唇裂人群进行比较。
Cleft Palate Craniofac J. 2024 Sep;61(9):1548-1558. doi: 10.1177/10556656231177139. Epub 2023 May 29.
9
Prevalence and Factors Associated with Behavioral Problems in 5-Year-Old Children Born with Cleft Lip and/or Palate from the Cleft Collective.《腭裂患儿行为问题的发生率及相关因素分析》。
Cleft Palate Craniofac J. 2024 Jan;61(1):40-51. doi: 10.1177/10556656221119684. Epub 2022 Sep 9.
10
Being Normal yet Different: A Qualitative Study on the Dualistic Experience of Living With Unilateral Cleft Lip and Palate.正常与异样并存:单侧唇腭裂患者双重体验的定性研究。
Cleft Palate Craniofac J. 2024 Jan;61(1):52-60. doi: 10.1177/10556656221121037. Epub 2022 Aug 17.