Hunt Orlagh, Burden Donald, Hepper Peter, Stevenson Mike, Johnston Chris
School of Dentistry, Queen's University Belfast, Northern Ireland.
Cleft Palate Craniofac J. 2007 May;44(3):304-11. doi: 10.1597/05-205.
(1) to determine the opinion of parents regarding the psychosocial functioning of their child with cleft lip and/or palate (CLP); (2) to identify predictors of psychosocial functioning; and (3) to determine the level of agreement between children with CLP and their parents.
One hundred twenty-nine parents of children with CLP and 96 parents of children without CLP participated in this cross-sectional study.
Parental opinion of the child's self-esteem, anxiety, happiness, and problems caused by facial appearance were assessed using visual analogue scales. Parents completed the Child Behavior Checklist and were interviewed.
Children with CLP were more anxious (p < 0.05), less happy with their appearance (p < 0.001), and in general (p < 0.05) had lower self-esteem (p < 0.05) and greater behavioral problems (p < 0.001) compared with non-CLP children. Parents reported that their child with CLP was teased more often (p < 0.001) and was less satisfied with his/her speech (p < 0.01) compared with reports of parents in the control group. A number of factors affected parents' ratings of their child's psychosocial functioning (presence of CLP, appearance happiness, previous history of CLP, and visibility of scar). Children who had been teased were more anxious (p < or = 0.01), less happy with their appearance (p < 0.001) and had greater behavioral problems (p < 0.001).
Parents of children with CLP reported various psychosocial problems among their children. Parents considered children who had been teased to have greater psychosocial problems.
（1）确定唇腭裂（CLP）患儿家长对其孩子心理社会功能的看法；（2）识别心理社会功能的预测因素；（3）确定CLP患儿与其家长之间的一致程度。
129名CLP患儿的家长和96名非CLP患儿的家长参与了这项横断面研究。
使用视觉模拟量表评估家长对孩子自尊、焦虑、幸福以及面部外观所导致问题的看法。家长完成儿童行为量表并接受访谈。
与非CLP患儿相比，CLP患儿更焦虑（p < 0.05），对自己的外貌更不满意（p < 0.001），总体上自尊较低（p < 0.05）且行为问题更多（p < 0.001）。家长报告称，与对照组家长的报告相比，他们患有CLP的孩子更容易被取笑（p < 0.001），对自己的 speech 更不满意（p < 0.01）。一些因素影响了家长对孩子心理社会功能的评分（CLP的存在、外貌满意度、CLP的既往史以及疤痕的可见度）。被取笑的孩子更焦虑（p ≤ 0.01），对外貌更不满意（p < 0.001），且行为问题更多（p < 0.001）。
CLP患儿的家长报告其孩子存在各种心理社会问题。家长认为被取笑的孩子存在更严重的心理社会问题。
