Liedberg Gunilla M, Burckhardt Carol S, Henriksson Chris M
Department of Neuroscience and Locomotion, Section of Occupational Therapy, Faculty of Health Sciences, Linköping University, Sweden.
Disabil Rehabil. 2006 Oct 15;28(19):1177-84. doi: 10.1080/09638280600551534.
The major symptoms of fibromyalgia (FM)--pain, tiredness, disrupted sleep, and muscle weakness--severely impact everyday activities, including the paid work role of women who have had FM for a long time. There are no prospective studies on young and newly diagnosed women with FM. The aim of the present study was to describe and compare difficulties young and newly diagnosed women in Sweden and the United States experienced during their first year after diagnosis.
Three interviews, 6 months apart, were conducted, with 49 Swedish and 45 US women between the ages of 18 and 39. Five open-ended questions were asked concerning physical, psychological and social difficulties and limitations, and factors that increased or decreased their difficulties and limitations. At interviews 2 and 3 the women were also asked about ways of preventing their difficulties. The answers were written down and analysed by a content analysis approach.
Consistent categories of difficulties were reported: symptoms, movements, activities, moods, social network, external factors and coping strategies. More US women were working outside their homes than were their Swedish counterparts and they expressed more difficulties compared with the Swedish women.
In general, difficulties decreased and coping strategies increased over the 1-year period in both groups of newly diagnosed, young women.
纤维肌痛（FM）的主要症状——疼痛、疲劳、睡眠紊乱和肌肉无力——严重影响日常活动，包括长期患有FM的女性的有偿工作。目前尚无针对年轻及新诊断出FM的女性的前瞻性研究。本研究旨在描述和比较瑞典和美国年轻及新诊断出FM的女性在确诊后第一年所经历的困难。
对49名瑞典女性和45名年龄在18至39岁之间的美国女性进行了间隔6个月的三次访谈。针对身体、心理和社会方面的困难与限制，以及增加或减少这些困难与限制的因素，提出了五个开放式问题。在第二次和第三次访谈中，还询问了这些女性预防困难的方法。答案被记录下来，并采用内容分析法进行分析。
报告了一致的困难类别：症状、运动、活动、情绪、社交网络、外部因素和应对策略。外出工作的美国女性比瑞典女性更多，并且她们比瑞典女性表达了更多困难。
总体而言，在这两组新诊断出FM的年轻女性中，困难在1年期间有所减少，应对策略有所增加。
