Richardson Jane C, Ong Bie Nio, Sim Julius
Primary Care Sciences Research Centre, Keele University, Keele, Staffs ST5 5BG, UK.
Chronic Illn. 2006 Sep;2(3):209-18. doi: 10.1177/17423953060020030201.
This paper reports findings from a larger study that aimed to explore how people with chronic widespread pain experience, understand and make meaning of their 'condition', and attempt to influence or exert control over their pain. This included an exploration of sufferers' understanding of the past and future as well as of their present situation.
A combination of data generation methods was used, including lifegrid interviews, diaries and diary interviews, with eight people with chronic widespread pain. Five family members also participated in interviews. Analytical methods were based on interpretative phenomenological analysis (IPA).
With regard to their views about the future, participants could be categorized into those who were 'optimistic' ('things can only get better'), those who were pessimistic ('things will get worse'), and those who were overwhelmed with uncertainty about the future. Uncertainty was a dominant feature in all the accounts of the future.
The pervading uncertainty of chronic widespread pain, in which there is no framework for the trajectory of the condition, affects perceptions of the future and makes planning for the future difficult. The findings also raise the question of how this makes chronic widespread pain different from other chronic conditions in terms of understanding of chronicity, time and future, and hence 'acceptance'.
本文报告了一项更大规模研究的结果，该研究旨在探讨患有慢性广泛性疼痛的人如何体验、理解并赋予其“病情”意义，以及尝试对自身疼痛施加影响或进行控制。这包括探究患者对过去、未来以及当前状况的理解。
采用了多种数据生成方法，包括生活网格访谈、日记及日记访谈，研究对象为8名患有慢性广泛性疼痛的患者。5名家庭成员也参与了访谈。分析方法基于解释现象学分析（IPA）。
关于对未来的看法，参与者可分为“乐观型”（“情况只会越来越好”）、“悲观型”（“情况会越来越糟”）以及对未来充满不确定性的人。不确定性是所有关于未来描述中的一个主要特征。
慢性广泛性疼痛普遍存在的不确定性，即病情发展没有既定框架，影响了对未来的认知，使得未来规划变得困难。研究结果还提出了一个问题，即在对慢性、时间和未来的理解以及“接受度”方面，这如何使慢性广泛性疼痛与其他慢性疾病有所不同。
