Lavie-Ajayi Maya, Almog Nitsan, Krumer-Nevo Michal
Spitzer Department of Social Work, The Israeli Center for Qualitative Research of People and Societies (ICQM), Ben-Gurion University of the Negev, Beer-Sheva, Israel.
Chronic Illn. 2012 Sep;8(3):192-200. doi: 10.1177/1742395312449665. Epub 2012 May 31.
This paper reports finding from a study that focused on people living with chronic pain, chronicling their experiences of pain and emotional distress, and their social and personal narratives.
The paper presents an interpretative phenomenological analysis (IPA) of six interviews conducted with men and women aged between 27 and 61. The interviews were taken from a larger study of the experience of chronic pain.
Chronic pain is a double faced phenomenon: a vivid and total experience on one hand, an elusive and deceptive phenomenon on the other. The nature of this phenomenon - together with the medical and public discourse that ignores and delegitimizes chronic pain this condition - prompts people to question their own experiences and to face what we define as a narratological distress.
Narratological distress is the internal battle between two unwanted narratives: The elusive delegitimizing narrative of denial, which seeks to ignore the experience of pain; and the narrative that acknowledges the pain, but with the price of accepting oneself as "ill" or "disabled."
本文报告了一项针对慢性疼痛患者的研究结果,记录了他们的疼痛经历、情绪困扰以及他们的社会和个人叙事。
本文对6名年龄在27至61岁之间的男性和女性进行的访谈进行了解释性现象学分析(IPA)。这些访谈取自一项关于慢性疼痛经历的更大规模研究。
慢性疼痛是一种双面现象:一方面是生动而全面的体验,另一方面是难以捉摸且具有欺骗性的现象。这种现象的本质——连同忽视慢性疼痛并使其失去合法性的医学和公众话语——促使人们质疑自己的经历,并面对我们所定义的叙事困扰。
叙事困扰是两种不受欢迎的叙事之间的内心斗争:一种是难以捉摸的、使疼痛失去合法性的否认叙事,它试图忽视疼痛的体验;另一种叙事承认疼痛,但代价是接受自己是“生病”或“残疾”。