Sterling Rene, Henderson Gail E, Corbie-Smith Giselle
School of Public Health, University of North Carolina, Chapel Hill, NC 27599-7240, USA.
Am J Public Health. 2006 Nov;96(11):1971-8. doi: 10.2105/AJPH.2005.069286. Epub 2006 Oct 3.
Scientists are turning to genetic variation research in hopes of addressing persistent racial/ethnic disparities in health. Despite ongoing controversy, the advancement of genetic variation research is likely to produce new knowledge and technologies that will substantially change the ways in which we understand and value health. They also may affect the ways in which individuals and groups organize socially, politically, and economically. Addressing concerns that may exist in different communities is vital to the scientific and ethical advancement of genetic variation research. We review empirical studies of public willingness to participate in and opinions about genetic research with particular attention to differences in consent and opinion by racial/ethnic group membership.
科学家们正在转向基因变异研究,以期解决健康方面长期存在的种族/族裔差异问题。尽管仍存在争议,但基因变异研究的进展可能会产生新的知识和技术,从而极大地改变我们理解和重视健康的方式。它们还可能影响个人和群体在社会、政治和经济方面的组织方式。解决不同社区可能存在的担忧对于基因变异研究的科学和伦理进步至关重要。我们回顾了关于公众参与基因研究的意愿和看法的实证研究,特别关注不同种族/族裔群体在同意和观点上的差异。