Evans Wendy G, Tulsky James A, Back Anthony L, Arnold Robert M
Department of Medicine, Section of Medical Ethics and Palliative Care, Institute for Doctor-Patient Communication, University of Pittsburgh, Pittsburgh, Pennsylvania 15213, USA.
Cancer J. 2006 Sep-Oct;12(5):417-24. doi: 10.1097/00130404-200609000-00010.
Patients undergo multiple transitions during the course of their cancer care. Oncologists are uniquely positioned to help patients through these transitions. When patients' situations change, they must cope with loss and associated negative emotions. They then are able to redefine hope. During transitions, patients want their oncologists to provide biomedical information, show that they care about and understand them as individuals, and balance hope and realism. Eliciting concerns and expressing empathy shows patients that their oncologist cares about and understands them and also helps patients to cope with the loss and negative emotions that transitions create. Oncologists can maintain hope by being sensitive to what patients are ready to hear when, and by helping them discover and identify realistic hopes. This is accomplished with the Ask-Tell-Ask and Hope for the Best, Prepare for the Worst techniques, and most importantly by being curious about patients' hopes and fears.
患者在癌症治疗过程中会经历多次转变。肿瘤学家在帮助患者度过这些转变方面具有独特的地位。当患者的情况发生变化时,他们必须应对失落感及相关的负面情绪。然后,他们能够重新定义希望。在转变过程中,患者希望肿瘤学家提供生物医学信息,表明他们关心并了解患者个体,同时平衡希望与现实。引发患者的担忧并表达同理心,向患者表明他们的肿瘤学家关心并理解他们,也有助于患者应对转变带来的失落感和负面情绪。肿瘤学家可以通过敏锐感知患者在何时准备好听什么,并帮助他们发现和确定现实的希望来维持希望。这可以通过“询问 - 告知 - 询问”以及“抱最好的希望,做最坏的打算”技巧来实现,最重要的是要对患者的希望和恐惧保持好奇。