Krause James S, Coker Jennifer L
Department of Rehabilitation Science, Medical University of South Carolina, Charleston, South Carolina 31313, USA.
J Spinal Cord Med. 2006;29(4):371-6. doi: 10.1080/10790268.2006.11753885.
BACKGROUND/OBJECTIVE: This longitudinal study investigated changes in life satisfaction, general health, activities, and adjustment over 3 decades among individuals with spinal cord injury (SCI).
The cohort of participants was identified from outpatient records of a large Midwestern United States university hospital. In 1973, 256 individuals completed an initial survey. There were 5 subsequent follow-up surveys, with the most recent being in 2002. Seventy-eight participants completed materials on all 6 occasions.
The Life Situation Questionnaire was used to identify changes over the 30-year period in 6 areas of life satisfaction, self-rated adjustment (current and predicted), employment status, activities, and medical treatments.
These analyses used data from 3 points in time, separated by approximately 15-year intervals. One-way analysis of variance with repeated measures was used to identify changes in outcomes between 1973, 1988, and 2002 for all continuous variables.
We found a mixed pattern of changes over the 30 years, with increases noted during the first 15-year period in sitting tolerance, educational and employment outcomes, satisfaction with employment, and adjustment. Although these changes tended to remain stable during the last 15 years, subtle declines were suggested in some areas, with clear declines noted in terms of diminished sitting tolerance, an increase in the number of physician visits, and decreased satisfaction with social life and sex life.
The results suggest that many positive changes occur within the first 2 decades after SCI, followed by a period of stability in some life areas, but decline with aging in some participation and health-related aspects of life.
背景/目的:这项纵向研究调查了脊髓损伤(SCI)患者在30年期间生活满意度、总体健康状况、活动能力及适应情况的变化。
研究对象队列来自美国中西部一所大型大学医院的门诊记录。1973年,256人完成了初始调查。随后进行了5次随访调查,最近一次是在2002年。78名参与者在所有6次调查中均完成了相关材料。
使用生活状况问卷来确定30年期间在生活满意度、自我评定适应情况(当前和预期)、就业状况、活动能力及医疗治疗等6个方面的变化。
这些分析使用了3个时间点的数据,时间间隔约为15年。对所有连续变量采用重复测量的单因素方差分析来确定1973年、1988年和2002年之间结果的变化。
我们发现30年期间变化情况不一,在前15年中,坐位耐受能力、教育及就业成果、就业满意度和适应情况有所改善。尽管这些变化在最后15年中趋于稳定,但某些方面出现了细微下降,坐位耐受能力下降、就诊次数增加、对社交生活和性生活的满意度降低等情况较为明显。
结果表明,脊髓损伤后的头20年内会出现许多积极变化,随后在某些生活领域保持稳定,但在生活的某些参与度和健康相关方面会随着年龄增长而下降。