Vogel L C, Klaas S J, Lubicky J P, Anderson C J
Chicago Shriners Hospital for Children, Rush Medical College, IL, USA.
Arch Phys Med Rehabil. 1998 Dec;79(12):1496-503. doi: 10.1016/s0003-9993(98)90409-9.
To determine long-term outcomes and life satisfaction of adults who sustained pediatric spinal cord injury (SCI).
Structured interview of adults who were 25 years or older who had pediatric SCI.
Community.
A convenience sample of 46 patients from a total of 81 patients who received care in an SCI program: 1 refused participation, 4 died, and 30 were lost to follow-up.
A structured questionnaire including physical, psychosocial, and medical information. The Craig Handicap Assessment and Reporting Technique and two measures of life satisfaction were also administered.
Participants were 25 to 34 years old, mean 27 years. Thirty-two had tetraplegia and 14 had paraplegia. Thirty-one were men. Mean years of education was 14. Fifty-four percent were employed, 48% lived independently, and 15% were married. Life satisfaction was associated with education, income, satisfaction with employment, and social/recreation opportunities, and was inversely associated with some medical complications. Life satisfaction was not significantly associated with level of injury, age at injury, or duration of injury.
Individuals who had pediatric SCI, much like adult-onset SCI, have the greatest opportunity for a satisfying adult life if rehabilitation emphasizes psychosocial factors such as education, employment, and long-term health management.
确定小儿脊髓损伤（SCI）成年患者的长期预后及生活满意度。
对25岁及以上的小儿脊髓损伤成年患者进行结构化访谈。
社区。
从81名在脊髓损伤项目中接受治疗的患者中选取的46名便利样本患者：1人拒绝参与，4人死亡，30人失访。
一份包含身体、心理社会和医疗信息的结构化问卷。还采用了克雷格残疾评估与报告技术以及两项生活满意度测量指标。
参与者年龄在25至34岁之间，平均27岁。32人患有四肢瘫痪，14人患有截瘫。31人为男性。平均受教育年限为14年。54%的人就业，48%的人独立生活，15%的人已婚。生活满意度与教育程度、收入、就业满意度以及社会/娱乐机会相关，且与一些医疗并发症呈负相关。生活满意度与损伤程度、受伤年龄或损伤持续时间无显著关联。
小儿脊髓损伤患者与成年起病的脊髓损伤患者一样，如果康复注重教育、就业和长期健康管理等心理社会因素，他们拥有过上满意成年生活的最大机会。
