Will Eric J
Department of Renal Medicine, St. James's University Hospital, Leeds, UK.
J Nephrol. 2006 Jul-Aug;19(4):492-9.
Over the past decade the UK Renal Registry has rehearsed the collection, analysis and presentation of a range of laboratory, as well as demographic, data from an increasing number of renal units. This has been accomplished by fully electronic means. The normalisation of disparate laboratory results to allow comparative audit remains a problem. The exercise has allowed a largely passive and intuitive exploration of the role that such data aggregation can play in a modern clinical context that is influenced by the Evidence Based Medicine movement and the development of Clinical Practice Guidelines, Standards and Clinical Performance Measures. To extend the data collection to clinical variables from these unselected patient groups, in order to explain as well as to describe clinical activity, is attractive but appears yet more challenging. These experiences can be used perhaps by the nephrological community to inform the further development of similar proposals in Europe, especially the concepts and structures required to link such information to the prospect of real clinical benefit.
在过去十年中，英国肾脏注册机构一直在演练从越来越多的肾脏单位收集、分析和呈现一系列实验室数据以及人口统计数据。这是通过完全电子化的方式完成的。将不同的实验室结果进行标准化以进行比较性审计仍然是一个问题。这项工作使得人们能够在很大程度上以被动和直观的方式探索此类数据汇总在受循证医学运动以及临床实践指南、标准和临床绩效指标发展影响的现代临床环境中所能发挥的作用。将数据收集扩展到这些未经挑选的患者群体的临床变量，以便解释和描述临床活动，很有吸引力，但似乎更具挑战性。肾脏病学界或许可以利用这些经验，为欧洲类似提议的进一步发展提供参考，尤其是将此类信息与真正临床益处的前景相联系所需的概念和结构。
