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《美好生活II:2003年以来的进展回顾》

Living Well II: a review of progress since 2003.

作者信息

Austin Joan K, Carr Deborah A, Hermann Bruce P

机构信息

Distinguished Professor, Indiana University School of Nursing, Indianapolis, Indiana, USA.

出版信息

Epilepsy Behav. 2006 Nov;9(3):386-93. doi: 10.1016/j.yebeh.2006.08.015.

Abstract

Epilepsy as an issue for the public health community has a relatively short history in the United States. Not since the 1970s, when Congress established the Commission for the Control of Epilepsy and Its Consequences and the publication of its formal report, "Plan for Nationwide Action on Epilepsy," has significant attention been paid to the public health implications of epilepsy. In fact, until the U.S. Congress established a small epilepsy program at the Centers for Disease Control and Prevention (CDC) 12 years ago, the condition was practically invisible at all levels of organized public health. Since then, two major conferences, and the recommendations arising from them, have generated a substantially increased level of activity in research, surveillance, and the production and distribution of public education materials, as well as a national initiative to improve access to care and to prevent epilepsy's negative social impact. Even at the state level, long devoid of any attention to epilepsy in public health planning or provision of services, things are beginning to change, and new demonstration programs designed to identify and serve vulnerable populations with epilepsy are underway. This review highlights these activities, reflects a new and heightened level of attention to epilepsy, and speculates on what may lie ahead in the ongoing effort to give epilepsy greater visibility and higher priority in the public health arena.

摘要

癫痫作为公共卫生领域的一个问题,在美国的历史相对较短。自20世纪70年代以来,当时国会设立了癫痫控制及其后果委员会并发表了其正式报告《全国癫痫行动计划》,此后才开始对癫痫的公共卫生影响给予重大关注。事实上,直到12年前美国国会在疾病控制和预防中心(CDC)设立了一个小型癫痫项目之前,在有组织的公共卫生的各个层面上,这种疾病几乎都无人关注。从那时起,两次主要会议以及由此产生的建议,在研究、监测、公共教育材料的制作和分发方面带来了大幅增加的活动水平,同时还有一项全国性倡议,旨在改善医疗服务的可及性并防止癫痫的负面社会影响。即使在州一级,长期以来在公共卫生规划或服务提供中都没有对癫痫给予任何关注,现在情况也开始发生变化,旨在识别和服务癫痫弱势群体的新示范项目正在开展。本综述突出了这些活动,反映了对癫痫的新的且更高程度的关注,并推测在持续努力使癫痫在公共卫生领域获得更高知名度和更高优先级的过程中未来可能会发生什么。

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