Corkin Doris A P, Price Jayne, Gillespie Elizabeth
School of Nursing and Midwifery, Medical Biology Centre, Queen's University Belfast, 97 Lisburn Road, Belfast, Northern Ireland, BT9 7BL.
Int J Palliat Nurs. 2006 Sep;12(9):422-7. doi: 10.12968/ijpn.2006.12.9.21870.
In recent years there has been an increasing demand for respite care in the community setting, as advances in medicine and technology have enhanced the life expectancy of children and young people with a life-limiting illness. However, the need for flexible respite provision in the home frequently presents a challenge for those health care professionals involved in caring for these children and their families. Following a review of literature this paper will demonstrate how a family-centred approach to respite provision and palliative care can enhance the quality of life for a child nearing the end of life and support the expressed needs of the child's family with accessible respite care.
近年来，随着医学和技术的进步延长了患有危及生命疾病的儿童和年轻人的预期寿命，社区环境中对临时护理的需求日益增加。然而，在家中提供灵活的临时护理需求，对那些参与照顾这些儿童及其家庭的医疗保健专业人员来说，常常是一项挑战。在对文献进行综述之后，本文将展示以家庭为中心的临时护理和姑息治疗方法如何能够提高濒临生命终点儿童的生活质量，并通过提供可及的临时护理来满足儿童家庭所表达的需求。
