Greenley Rachel Neff, Josie Katherine Leigh, Drotar Dennis
Department of Pediatrics, Case Western Reserve University School of Medicine, Cleveland, Ohio, USA.
J Asthma. 2006 Nov;43(9):687-93. doi: 10.1080/02770900600925510.
This study examined patterns of agreement versus disagreement in family perceptions of caregiver and youth involvement in asthma management tasks and associations of these patterns with youth asthma outcomes. Fifty-six caregiver-child dyads completed questionnaires of family involvement in asthma management and asthma health outcomes (i.e., symptom days, health care utilization, and medication adherence). Discrepancies were documented for perceptions of both caregiver and youth involvement. Caregiver overestimation of youth involvement in asthma management was associated with greater asthma severity and more asthma symptoms. Discrepancies in family perceptions of involvement pose salient challenges for effective clinical management and require clinical attention.
本研究调查了家庭在照顾者和青少年参与哮喘管理任务方面的看法上的一致与不一致模式，以及这些模式与青少年哮喘结果之间的关联。56对照顾者-儿童二元组完成了关于家庭参与哮喘管理和哮喘健康结果（即症状天数、医疗保健利用和药物依从性）的问卷。记录了照顾者和青少年参与度认知上的差异。照顾者对青少年参与哮喘管理的高估与更严重的哮喘和更多的哮喘症状相关。家庭在参与度认知上的差异给有效的临床管理带来了显著挑战，需要临床予以关注。
