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不做计划就是计划着失败:通过生存护理计划提高护理质量。

Failing to plan is planning to fail: improving the quality of care with survivorship care plans.

作者信息

Earle Craig C

机构信息

Division of Population Sciences, Department of Medical Oncology, Dana-Farber Cancer Institute, Boston, MA 02115, USA.

出版信息

J Clin Oncol. 2006 Nov 10;24(32):5112-6. doi: 10.1200/JCO.2006.06.5284.

DOI:10.1200/JCO.2006.06.5284
PMID:17093272
Abstract

The recent Institute of Medicine report "From Cancer Patient to Cancer Survivor: Lost in Transition" recommended the creation of survivorship care plans for patients as they complete primary therapy for cancer to ensure clarity for all involved about patients' diagnoses, treatments received, and surveillance plans. Any previously existing follow-up guidelines for cancer survivors have been largely restricted to surveillance for recurrence of the primary disease. An important message of the Institute of Medicine report is that survivorship care plans must surpass this and address the chronic effects of cancer (pain, fatigue, premature menopause, depression/anxiety), monitoring for and preventing late effects like osteoporosis, heart disease, and second malignancies, and promoting healthy lifestyles. It should explicitly identify the providers responsible for each aspect of ongoing care and provide information on resources available for psychosocial and other practical issues that may arise as a result of the prior cancer diagnosis. Although having some sort of a plan is clearly necessary to achieve high quality care, there are practical barriers to formal off-treatment consultations and the creation of written documents that may become part of the medical record. This article reviews the elements of the proposed survivorship care plan and discusses areas of research and development needed to make them part of standard oncology practice.

摘要

美国医学研究所最近发布的报告《从癌症患者到癌症幸存者:过渡中的迷失》建议,在患者完成癌症的初始治疗后,为其制定生存护理计划,以确保所有相关人员清楚了解患者的诊断、所接受的治疗以及监测计划。此前针对癌症幸存者的任何后续指导方针,大多局限于对原发性疾病复发情况的监测。美国医学研究所报告传达的一个重要信息是,生存护理计划必须超越这一范畴,还要应对癌症的慢性影响(疼痛、疲劳、过早绝经、抑郁/焦虑),监测并预防骨质疏松症、心脏病和二次恶性肿瘤等晚期影响,以及推广健康的生活方式。它应明确指出负责持续护理各方面的医护人员,并提供有关心理社会问题和因先前癌症诊断可能出现的其他实际问题的可用资源信息。虽然为实现高质量护理制定某种计划显然是必要的,但正式的治疗后咨询以及创建可能成为病历一部分的书面文件存在实际障碍。本文回顾了拟议的生存护理计划的要素,并讨论了使其成为标准肿瘤学实践一部分所需的研究和开发领域。

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