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[在肌萎缩侧索硬化病程中传达坏消息:方式与时机]

[Breaking bad news during the course of amyotrophic lateral sclerosis: how and when].

作者信息

Salachas F

机构信息

Centre SLA de Paris, Fédération des Maladies du Système Nerveux, Hôpital de la Salpêtrière, 47, boulevard de l'Hôpital, 75793 Paris Cedex 13 Paris.

出版信息

Rev Neurol (Paris). 2006 Jun;162 Spec No 2:4S127-4S129.

Abstract

Operatory procedures can help to break bad news in ALS but the main goal of this unpleasant task stands in the quality of the relationship between the physician and his patient which must be preserved throughout the course of the disease. Plasticity is obviously the best way to characterize the appropriate kind of care in such a variable disease. The caregivers and the psychological factors must also be taken into account. As it is the case for therapeutic research, breaking bad news in ALS requieres a specific know-how which should be ideally performed by specialized teams within the framework of dedicated ALS centers.

摘要

手术操作程序有助于在肌萎缩侧索硬化症(ALS)中传达坏消息,但这项令人不快的任务的主要目标在于医生与患者之间关系的质量,这种关系在疾病的整个过程中都必须得到维护。在这种多变的疾病中,灵活性显然是描述适当护理方式的最佳方式。护理人员和心理因素也必须加以考虑。正如治疗研究的情况一样,在ALS中传达坏消息需要特定的专业技能,理想情况下应由专门的ALS中心框架内的专业团队来执行。

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