Im Eun-Ok
School of Nursing, University of Texas at Austin, 1700 Red River, Austin, TX 78701, USA.
Cancer Nurs. 2006 Nov-Dec;29(6):441-50; quiz 451-2. doi: 10.1097/00002820-200611000-00002.
Not considering cancer patients' own views and experience with pain, especially gender and ethnic differences in their cancer pain experience, was reported to be a major contributor to the miscommunication that frequently results in inadequate cancer pain management. The purpose of this study was to explore white cancer patients' perception of gender and ethnic differences in pain experience through an online forum. This was a descriptive qualitative study among 29 white cancer patients based on a feminist approach. Nine topics related to cancer pain experience were used. The data were analyzed using thematic analysis: 5 themes were identified. First, the participants perceived that pain accompanies cancer throughout the diagnosis and treatment process. Second, the specific characteristics of the participants' individual culture and their view of pain and cancer could result in different cancer pain experiences even among white cancer patients. Third, the participants complained that women's pain was not taken seriously by healthcare providers. Fourth, the participants reported highly individualized pain experience with emotional pain. Finally, the participants wanted to have a control of their own pain management process. Based on the findings, implications for nursing research and practice are proposed.
据报道,不考虑癌症患者自身对疼痛的看法和经历,尤其是他们在癌症疼痛经历中的性别和种族差异,是导致沟通不畅的主要因素,而这种沟通不畅常常导致癌症疼痛管理不足。本研究的目的是通过一个在线论坛,探讨白人癌症患者对疼痛经历中性别和种族差异的认知。这是一项基于女性主义方法,针对29名白人癌症患者开展的描述性定性研究。使用了九个与癌症疼痛经历相关的主题。采用主题分析法对数据进行分析:识别出了五个主题。首先,参与者认为在整个诊断和治疗过程中,疼痛都伴随着癌症。其次,参与者个人文化的特定特征以及他们对疼痛和癌症的看法,即使在白人癌症患者中也可能导致不同的癌症疼痛经历。第三,参与者抱怨医疗服务提供者没有认真对待女性的疼痛。第四,参与者报告了高度个性化的疼痛经历以及情感疼痛。最后,参与者希望能够掌控自己的疼痛管理过程。基于这些发现,提出了对护理研究和实践的启示。