Im Eun-Ok, Lim Hyun-Ju, Clark Maresha, Chee Wonshik
School of Nursing, The University of Texas at Austin, Texas 78701, USA.
Cancer Nurs. 2008 Jan-Feb;31(1):38-46; quiz 47-8. doi: 10.1097/01.NCC.0000305685.59507.9e.
Although very little is known about African American cancer patients' pain experience, a few studies have indicated that their cancer pain experience is unique and somewhat different from that of other ethnic groups. The purpose of the study reported in this article was to explore African American cancer patients' pain experience using an online forum. This study was a qualitative online forum designed from a feminist perspective and conducted among 11 African American cancer patients who were recruited through both Internet and real settings. Nine online forum topics were used to administer the 6-month online forum, and the data were analyzed using thematic analysis. Four themes emerged through the data analysis process. First, participants viewed cancer as a challenge in life that they should fight against. Second, cancer pain was differentiated from ordinary pain because cancer was stigmatized in their culture. Third, participants viewed that African Americans, especially women, were culturally raised to be strong, and this African American cultural heritage inhibited cancer patients from expressing pain and seeking help for pain management. Finally, the findings indicated certain changes in perspectives among African American cancer patients during the disease process, which might make them tolerate pain through praying to God and reading the Bible. Based on the findings, we suggest further studies among diverse groups of African American cancer patients, with a focus on cultural attitudes toward cancer pain and influences of family on cancer pain experience.
尽管人们对非裔美国癌症患者的疼痛体验知之甚少,但一些研究表明,他们的癌症疼痛体验是独特的,与其他种族群体有所不同。本文所报道的这项研究的目的是利用一个在线论坛来探索非裔美国癌症患者的疼痛体验。这项研究是一个从女性主义视角设计的定性在线论坛,在11名通过网络和现实环境招募的非裔美国癌症患者中进行。九个在线论坛主题被用于开展为期6个月的在线论坛,并使用主题分析法对数据进行分析。数据分析过程中出现了四个主题。首先,参与者将癌症视为生活中他们应该抗争的挑战。其次,癌症疼痛与普通疼痛不同,因为在他们的文化中癌症被污名化。第三,参与者认为非裔美国人,尤其是女性,在文化上被培养得很坚强,这种非裔美国文化遗产阻碍了癌症患者表达疼痛并寻求疼痛管理方面的帮助。最后,研究结果表明非裔美国癌症患者在疾病过程中的观念有一定变化,这可能使他们通过向上帝祈祷和阅读《圣经》来忍受疼痛。基于这些发现,我们建议对不同群体的非裔美国癌症患者进行进一步研究,重点关注对癌症疼痛的文化态度以及家庭对癌症疼痛体验的影响。