Chipman Peter
Dalhousie University, Canada.
Penn Bioeth J. 2006 Spring;2(2):13-6.
The advance of medical technology now permits many genetic tests to be administered to a fetus in the womb. The goal of this testing is to determine the potential for genetically based disorders and disabilities. The use of these tests has major implications on the decision of a parent to abort a child based on what information they find in the prospective child's genes. Advocates of prenatal testing argue that it enables the families of these prospective children to make an informed decision when faced with the possibility of disability. I argue that this choice is drastically limited by social coercion through a discriminatory and stereotyped perception of the disabled community. Permitting an uncontrolled barrage of prenatal genetic tests will further promote the stereotype of a disabled life, and thus hinders our societal goal to recognise and promote equality and individuality. Which disabilities to test for, or what genes to search for, is a judgement that should be made only through extensive consultation with members of the disabled community, including individuals who have suffered from or who have been directly associated with the disability which is said to be tested.
医学技术的进步如今使得许多基因检测能够应用于子宫内的胎儿。这种检测的目的是确定基于基因的疾病和残疾的可能性。这些检测的使用对父母基于他们在前瞻性孩子基因中发现的信息决定堕胎有着重大影响。产前检测的支持者认为,这能使这些未来孩子的家庭在面临残疾可能性时做出明智的决定。我认为,这种选择受到社会强制的极大限制,这种强制源于对残疾群体的歧视性和刻板的认知。允许不受控制地大量进行产前基因检测将进一步强化残疾人生存的刻板印象,从而阻碍我们社会认可和促进平等与个性的目标。检测哪些残疾或搜索哪些基因,这一判断应该仅通过与残疾群体成员进行广泛协商来做出,包括那些遭受过或与据说要检测的残疾直接相关的个人。