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《类风湿性关节炎生活质量问卷》在澳大利亚的适应性调整。

Adaptation of the RAQoL for use in Australia.

作者信息

Cox S R, McWilliams L, Massy-Westropp N, Meads D M, McKenna S P, Proudman S

机构信息

Department of Rheumatology, Royal Adelaide Hospital, North Terrace, Adelaide, 5000, SA, Australia.

出版信息

Rheumatol Int. 2007 May;27(7):661-6. doi: 10.1007/s00296-006-0287-0. Epub 2006 Dec 29.

Abstract

Quality of life is an important patient-reported outcome of rheumatoid arthritis (RA) in addition to structural and functional outcomes. The RAQoL (Rheumatoid Arthritis Quality of Life questionnaire) was developed in the UK and the Netherlands as a disease-specific tool. It was adapted for use in the Australian social context and the reliability and validity was tested. A lay panel assessed the UK version and adapted the wording for use within Australia. Reliability and validity were assessed by a postal survey of the RAQoL and comparator questionnaires to 100 patients with RA. The RAQoL was easily adapted into Australian-English. Test-retest reliability was high with a Spearman rank correlation coefficient of 0.93. RAQoL scores correlated well with patient-perceived disease activity and severity--indicating good validity. The Australian version of the RAQoL is a valid and reliable tool for the assessment of quality of life. It is practical, easy to administer and has good potential for use in clinical settings and trials in Australia.

摘要

除了结构和功能结果外,生活质量是类风湿性关节炎(RA)患者报告的一项重要结果。类风湿性关节炎生活质量问卷(RAQoL)是在英国和荷兰开发的一种针对特定疾病的工具。它经过调整以适用于澳大利亚的社会环境,并对其信度和效度进行了测试。一个外行小组评估了英国版本,并对措辞进行了调整以便在澳大利亚使用。通过对100名类风湿性关节炎患者进行的RAQoL和对照问卷的邮寄调查来评估信度和效度。RAQoL很容易被改编成澳大利亚英语版本。重测信度很高,斯皮尔曼等级相关系数为0.93。RAQoL得分与患者感知的疾病活动和严重程度相关性良好,表明效度良好。澳大利亚版的RAQoL是评估生活质量的有效且可靠的工具。它实用、易于实施,在澳大利亚的临床环境和试验中有很好的应用潜力。

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