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西澳大利亚双胞胎登记册:一个基于人群的成人和儿童多胞胎登记册。

The Western Australian Twin Register: a population-based register of adult and child multiples.

作者信息

Lee Jessica D Y, Palmer Lyle J

机构信息

Laboratory for Genetic Epidemiology, Western Australian Institute for Medical Research, Perth, Western Australia, Australia.

出版信息

Twin Res Hum Genet. 2006 Dec;9(6):712-7. doi: 10.1375/183242706779462435.

Abstract

The Western Australian Twin Register (WATR) was established in 1997 to study the health of all child multiples born in Western Australia (WA). The Register has until recently consisted of all multiples born in WA between 1980 and 1997. Using unique record linkage capacities available through the WA data linkage system, we have subsequently been able to identify all multiple births born in WA since 1974. New affiliations with the Australian Twin Registry and the WA Institute for Medical Research are further enabled by the use of the WA Genetic Epidemiology Resource--a high-end bioinformatics infrastructure that allows efficient management of health datasets and facilitates collaborative research capabilities. In addition to this infrastructure, funding provided by these institutions has allowed the extension of the WATR to include a greater number of WA multiples, including those born between 1974 and 1979, and from 1998 onwards. These resources are in the process of being enabled for national and international access.

摘要

西澳大利亚双胞胎登记处(WATR)成立于1997年,旨在研究西澳大利亚州(WA)所有出生的多胞胎儿童的健康状况。该登记处直到最近还包括1980年至1997年在西澳大利亚州出生的所有多胞胎。通过西澳大利亚数据链接系统提供的独特记录链接能力,我们随后得以识别自1974年以来在西澳大利亚州出生的所有多胞胎。与澳大利亚双胞胎登记处和西澳大利亚医学研究所的新合作关系,通过使用西澳大利亚遗传流行病学资源进一步得以实现——这是一个高端生物信息学基础设施,能够高效管理健康数据集并促进合作研究能力。除了这一基础设施外,这些机构提供的资金使WATR得以扩展,纳入更多西澳大利亚州的多胞胎,包括1974年至1979年以及1998年以后出生的多胞胎。这些资源正在实现供国内和国际使用。

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