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互联网上关于脊髓脊膜膨出的信息是可以获取的,但质量参差不齐,而且需要较高的阅读水平。

Myelomeningocele information on the internet is accessible and of variable quality, and requires a high reading level.

作者信息

Bergman Jonathan, Konijeti Ramdev, Lerman Steven E

机构信息

Department of Urology, Division of Pediatric Urology, David Geffen School of Medicine at University of California Los Angeles, Los Angeles, California, USA.

出版信息

J Urol. 2007 Mar;177(3):1138-42. doi: 10.1016/j.juro.2006.10.019.

DOI:10.1016/j.juro.2006.10.019
PMID:17296433
Abstract

PURPOSE

We assessed the accessibility, readability and quality of myelomeningocele information on the Internet.

MATERIALS AND METHODS

We entered the term "spina bifida" into the Google, Yahoo! and Microsoft Network search engines, and stored the first 100 links from each Web site. A total of 164 unique Web sites remained for analysis, of which 159 were classified as relevant. Relevant Web sites were considered to have relevant content if more than 50% of the text was directly relevant to the disease, and to have relevant educational content if more than 50% of the text was aimed at relaying educational information. Readability was assessed using the Flesch-Kincaid Grade Level scale. The quality of the 159 Web sites with relevant content was assessed using American Public Health Association Criteria for Assessing Health Information on the Internet. Six criteria were assessed, namely credibility, content, links, design, interactivity and caveats. Web sites were analyzed by 2 separate medical doctors, with each reviewer blinded to the findings of the other. A weighted kappa statistic was used to calculate interrater reliability.

RESULTS

Of 159 relevant sites 146 (91.8%) had relevant content and 122 (76.7%) had relevant educational content. The average Flesch-Kincaid reading level was 10.9 (range 6 to 12). Quality was assessed on a 3-point scale, with 1 denoting poor quality, 2 fair and 3 good. Average scores were 1.92 for credibility, 1.88 for content, 2.29 for links, 2.53 for design, 1.99 for interactivity and 2.90 for caveats. The weighted kappa statistic for interrater reliability was 0.83.

CONCLUSIONS

Myelomeningocele information on the Internet is relatively accessible, requires a high reading level for comprehension and is of variable quality.

摘要

目的

我们评估了互联网上脊髓脊膜膨出信息的可获取性、可读性及质量。

材料与方法

我们在谷歌、雅虎和微软网络搜索引擎中输入“脊柱裂”一词,并保存每个网站的前100个链接。总共164个独立网站留待分析,其中159个被归类为相关网站。如果超过50%的文本与该疾病直接相关,则相关网站被认为具有相关内容;如果超过50%的文本旨在传递教育信息,则被认为具有相关教育内容。使用弗莱什-金凯德年级水平量表评估可读性。使用美国公共卫生协会互联网健康信息评估标准评估159个具有相关内容的网站的质量。评估了六个标准,即可信度、内容、链接、设计、交互性和警示。由两名独立的医生分析网站,每位评审员对另一位的结果不知情。使用加权kappa统计量计算评分者间信度。

结果

在159个相关网站中,146个(91.8%)具有相关内容,122个(76.7%)具有相关教育内容。弗莱什-金凯德平均阅读水平为10.9(范围为6至12)。质量按三分制评估,1表示质量差,2表示一般,3表示良好。可信度平均得分为1.92,内容为1.88,链接为2.29,设计为2.53,交互性为1.99,警示为2.90。评分者间信度的加权kappa统计量为0.83。

结论

互联网上的脊髓脊膜膨出信息相对容易获取,理解需要较高的阅读水平,且质量参差不齐。

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