Hopmans Wendy, Verstegen Naomi E, Haasbeek Cornelis J A, Damman Olga C, Slotman Ben J, Timmermans Danielle R M, Senan Suresh
Department of Public and Occupational Health and the EMGO+ Institute for Health and Care Research, VU University Medical Center, Amsterdam, The Netherlands.
Department of Radiation Oncology, VU University Medical Center, Amsterdam, The Netherlands.
J Radiosurg SBRT. 2012;1(4):303-315.
The use of stereotactic body radiation therapy (SBRT) for the treatment of stage I lung cancer has been associated with improvements in population-based survival in Western Europe. As patients are increasingly accessing the Internet for information on health-related topics, we evaluated the quality, usability and readability of online patient information about SBRT in three adjacent Western European countries.
We conducted a web search and analysis between May - June 2011. Thirteen key terms were entered into the Google search engine. We analyzed websites from the Netherlands, Germany and the United Kingdom, by using the DISCERN instrument, a tool designed to assess the quality of health information on treatment choices. In addition, websites' usability and readability were examined.
We identified a total of 20 websites. None of the websites received an excellent or good quality rating and only two were rated as fair (both from the United Kingdom). DISCERN scores rated 55% (N = 11) of the websites as poor, and 35% (N = 7) as very poor. Dutch websites had the lowest scores. Five websites attained relatively high usability scores, and none had sufficient readability scores.
Despite the fact that SBRT is widely used as a standard therapy in elderly patients with stage I NSCLC in the Netherlands, only limited high quality information is available on the Internet. Improvements in quality information available on the Internet are required in order to increase patient participation in decision-making.
在西欧,立体定向体部放射治疗(SBRT)用于治疗I期肺癌与基于人群的生存率提高相关。随着患者越来越多地通过互联网获取有关健康相关主题的信息,我们评估了西欧三个相邻国家关于SBRT的在线患者信息的质量、可用性和可读性。
我们在2011年5月至6月期间进行了网络搜索和分析。在谷歌搜索引擎中输入了13个关键词。我们使用DISCERN工具(一种旨在评估关于治疗选择的健康信息质量的工具)分析了来自荷兰、德国和英国的网站。此外,还检查了网站的可用性和可读性。
我们总共识别出20个网站。没有一个网站获得优秀或良好的质量评级,只有两个被评为中等(均来自英国)。DISCERN评分将55%(N = 11)的网站评为差,35%(N = 7)评为非常差。荷兰网站得分最低。五个网站获得了相对较高的可用性分数,没有一个网站具有足够的可读性分数。
尽管在荷兰SBRT被广泛用作老年I期非小细胞肺癌患者的标准治疗方法,但互联网上只有有限的高质量信息。为了增加患者参与决策,需要改善互联网上可用的质量信息。