Suppr超能文献

父母对患有遗传性疾病孩子的家庭功能的认知。

Parents' perceptions of functioning in families having a child with a genetic condition.

作者信息

Knafl Kathleen A, Knafl George J, Gallo Agatha M, Angst Denise

机构信息

Oregon Health & Science University, School of Nursing, Portland, OR, USA.

出版信息

J Genet Couns. 2007 Aug;16(4):481-92. doi: 10.1007/s10897-006-9084-x. Epub 2007 Feb 23.

Abstract

In a study of families having a child with a genetic condition, patterns of family functioning were identified through cluster analysis of families with two spouses. Patterns were based on both parents' assessments of family satisfaction and hardiness, as measured respectively by the Family APGAR and Family Hardiness Index. The validity and clinical significance of the clusters were supported by demonstrating that cluster membership distinguished between parental reports of their own quality of life and their child's functional status, as measured by the Quality of Life Index and the Functional Status II, respectively. The clusters were non-categorical in the sense that they did not depend on the type of genetic condition. These findings point to the importance of addressing family functioning as part of genetic counseling.

摘要

在一项针对有患遗传病孩子的家庭的研究中,通过对有两名配偶的家庭进行聚类分析,确定了家庭功能模式。这些模式基于父母双方对家庭满意度和坚韧度的评估,分别由家庭APGAR量表和家庭坚韧度指数来衡量。通过证明聚类成员能够区分父母各自报告的生活质量和孩子的功能状态(分别由生活质量指数和功能状态II量表来衡量),支持了这些聚类的有效性和临床意义。这些聚类并非基于遗传病类型,即它们不具有分类性。这些发现表明,将家庭功能作为遗传咨询的一部分来处理非常重要。

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验