家长对正常化结果和意义的看法。
Parental perceptions of the outcome and meaning of normalization.
机构信息
School of Nursing, University of North Carolina at Chapel Hill, 2007 Carrington Hall - CB 7460, Chapel Hill, NC 27599, USA.
出版信息
Res Nurs Health. 2010 Apr;33(2):87-98. doi: 10.1002/nur.20367.
Abstract
The purpose of this secondary analysis was to identify the meaning of normalization for parents of a child with a chronic genetic condition. The sample was comprised of 28 families (48 parents), selected to reflect two groups: Normalization Present (NP) and Normalization Absent (NA). Constant comparison analysis was used to identify themes characterizing parents' perceptions of the meaning of normalization. The meanings parents attributed to normalization reflected their evaluation of condition management, parenting role, and condition impact, with parents in the NP and NA groups demonstrating distinct patterns of meaning. These meaning patterns are discussed as an outcome of normalization. Providers can play a pivotal role in helping families achieve normalization by providing guidance on how to balance condition management with normal family life.
摘要
本二次分析旨在确定慢性遗传疾病患儿父母对正常化的理解。该样本由 28 个家庭（48 位家长）组成，选择反映两个群体：正常化存在（NP）和正常化缺失（NA）。采用恒比分析识别描述父母对正常化意义的看法的主题。父母赋予正常化的意义反映了他们对疾病管理、育儿角色和疾病影响的评估，NP 和 NA 组的父母表现出明显不同的意义模式。这些意义模式被讨论为正常化的结果。提供者可以通过提供如何平衡疾病管理与正常家庭生活的指导，在帮助家庭实现正常化方面发挥关键作用。
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