Lison H
Kinderheilkunde und Psychotherapie, Sozialpädiatrischen Zentrums Hannover.
Schweiz Med Wochenschr. 1992 Jan 25;122(4):112-6.
The term "chronic illness" subsumes a multitude of conditions and complaints, all of varying development. It is often impossible to establish a prognosis and only seldom is causal therapy available. A chronic illness or handicap must be seen as fate, not only for the affected child but also for his or her family. Both require concerned and competent support towards mastering their situation in a justifiably realistic way. A highly developed network must be available to families of chronically ill children to help them prevent and overcome crisis. The organization of this network requires much planning and effort. In many families with chronically ill or handicapped children the ability to develop and to make decisions can only be regained when the hopelessness and helplessness involved in having a severely chronically ill child has been recognized and accepted by all concerned.
“慢性病”一词涵盖了众多病症和不适，其发展情况各不相同。通常无法确定预后，而且很少有因果疗法可用。慢性病或残疾必须被视为一种命运，不仅对患病儿童而言如此，对其家庭也是如此。两者都需要关切且专业的支持，以便以合理现实的方式应对自身处境。必须为慢性病患儿家庭提供一个高度发达的网络，以帮助他们预防和克服危机。构建这个网络需要大量规划和努力。在许多有慢性病患儿或残疾儿童的家庭中，只有当所有相关方认识并接受了因孩子患有严重慢性病而产生的绝望和无助感时，他们才能重新恢复做出决策的能力。
