一项针对2596名纤维肌痛患者的网络调查。
An internet survey of 2,596 people with fibromyalgia.
作者信息
Bennett Robert M, Jones Jessie, Turk Dennis C, Russell I Jon, Matallana Lynne
机构信息
Oregon Health & Science University, Portland, OR, USA.
出版信息
BMC Musculoskelet Disord. 2007 Mar 9;8:27. doi: 10.1186/1471-2474-8-27.
BACKGROUND
This study explored the feasibility of using an Internet survey of people with fibromyalgia (FM), with a view to providing information on demographics, sources of information, symptoms, functionality, perceived aggravating factors, perceived triggering events, health care utilization, management strategies, and medication use.
METHODS
A survey questionnaire was developed by the National Fibromyalgia Association (NFA) in conjunction with a task force of "experts in the field". The questionnaire underwent several rounds of testing to improve its face validity, content validity, clarity and readability before it was mounted on the internet. The questionnaire consisted of 121 items and is available online at the website of the National Fibromyalgia Association.
RESULTS
The questionnaire was completed by 2,569 people. Most were from the United States, with at least one respondent from each of the 50 states. Respondents were predominantly middle-aged Caucasian females, most of whom had FM symptoms for > or = 4 years. The most common problems were morning stiffness, fatigue, nonrestorative sleep, pain, concentration, and memory. Aggravating factors included: emotional distress, weather changes, insomnia, and strenuous activity. Respondents rated the most effective management modalities as rest, heat, pain medications, antidepressants, and hypnotics. The most commonly used medications were: acetaminophen, ibuprofen, naproxen, cyclobenzaprine, amitriptyline, and aspirin. The medications perceived to be the most effective were: hydrocodone preparations, aprazolam, oxycodone preparations, zolpidem, cyclobenzaprine, and clonazepam.
CONCLUSION
This survey provides a snap-shot of FM at the end of 2005, as reported by a self-selected population of people. This descriptive data has a heuristic function, in that it identifies several issues for further research, such as the prescribing habits of FM health care providers, the role of emotional precipitants, the impact of obesity, the significance of low back pain and the nature of FM related stiffness.
背景
本研究探讨了通过互联网对纤维肌痛（FM）患者进行调查的可行性，旨在提供有关人口统计学、信息来源、症状、功能、感知到的加重因素、感知到的触发事件、医疗保健利用、管理策略和药物使用等方面的信息。
方法
美国纤维肌痛协会（NFA）与“该领域专家”特别工作组共同编制了一份调查问卷。在将问卷发布到互联网之前，经过了几轮测试以提高其表面效度、内容效度、清晰度和可读性。问卷包含121个项目，可在美国纤维肌痛协会的网站上在线获取。
结果
2569人完成了该问卷。大多数来自美国，50个州每个州至少有一名受访者。受访者主要是中年白人女性，其中大多数有纤维肌痛症状达4年或更长时间。最常见的问题是晨僵、疲劳、睡眠不佳、疼痛、注意力不集中和记忆力减退。加重因素包括：情绪困扰、天气变化、失眠和剧烈活动。受访者认为最有效的管理方式是休息、热敷、止痛药物、抗抑郁药和安眠药。最常用的药物是：对乙酰氨基酚、布洛芬、萘普生、环苯扎林、阿米替林和阿司匹林。被认为最有效的药物是：氢可酮制剂、阿普唑仑、羟考酮制剂、唑吡坦、环苯扎林和氯硝西泮。
结论
本次调查提供了2005年末由自行选择的人群报告的纤维肌痛情况。这些描述性数据具有启发作用，因为它确定了几个需要进一步研究的问题，例如纤维肌痛医疗保健提供者的处方习惯、情绪诱因的作用、肥胖的影响、下背痛的意义以及纤维肌痛相关僵硬的性质。
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