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一份报告:《脑性瘫痪的定义与分类》,2006年4月

A report: the definition and classification of cerebral palsy April 2006.

作者信息

Rosenbaum Peter, Paneth Nigel, Leviton Alan, Goldstein Murray, Bax Martin, Damiano Diane, Dan Bernard, Jacobsson Bo

机构信息

CanChild Centre for Childhood Disability Research, Hamilton, Ontario, Canada.

出版信息

Dev Med Child Neurol Suppl. 2007 Feb;109:8-14.

PMID:17370477
Abstract

For a variety of reasons, the definition and the classification of cerebral palsy (CP) need to be reconsidered. Modern brain imaging techniques have shed new light on the nature of the underlying brain injury and studies on the neurobiology of and pathology associated with brain development have further explored etiologic mechanisms. It is now recognized that assessing the extent of activity restriction is part of CP evaluation and that people without activity restriction should not be included in the CP rubric. Also, previous definitions have not given sufficient prominence to the non-motor neurodevelopmental disabilities of performance and behaviour that commonly accompany CP, nor to the progression of musculoskeletal difficulties that often occurs with advancing age. In order to explore this information, pertinent material was reviewed on July 11-13, 2004 at an international workshop in Bethesda, MD (USA) organized by an Executive Committee and participated in by selected leaders in the preclinical and clinical sciences. At the workshop, it was agreed that the concept 'cerebral palsy' should be retained. Suggestions were made about the content of a revised definition and classification of CP that would meet the needs of clinicians, investigators, health officials, families and the public and would provide a common language for improved communication. Panels organized by the Executive Committee used this information and additional comments from the international community to generate a report on the Definition and Classification of Cerebral Palsy, April 2006. The Executive Committee presents this report with the intent of providing a common conceptualization of CP for use by a broad international audience.

摘要

由于多种原因,脑性瘫痪(CP)的定义和分类需要重新审视。现代脑成像技术使人们对潜在脑损伤的本质有了新的认识,对脑发育相关神经生物学和病理学的研究进一步探索了病因机制。现在人们认识到,评估活动受限程度是CP评估的一部分,没有活动受限的人不应纳入CP范畴。此外,以往的定义没有充分重视CP常见伴随的非运动性神经发育障碍,即表现和行为方面的障碍,也没有重视随着年龄增长经常出现的肌肉骨骼问题的进展情况。为了探究这些信息,2004年7月11日至13日在美国马里兰州贝塞斯达举行了一次国际研讨会,由一个执行委员会组织,临床前和临床科学领域的一些知名专家参加,会上对相关资料进行了审议。在研讨会上,大家一致认为应保留“脑性瘫痪”这一概念。针对CP修订定义和分类的内容提出了建议,这些定义和分类应满足临床医生、研究人员、卫生官员、家庭和公众的需求,并为改善交流提供一种通用语言。执行委员会组织的小组利用这些信息以及国际社会的其他意见,编写了一份关于《脑性瘫痪的定义和分类》的报告,于2006年4月发布。执行委员会提交本报告的目的是为广大国际受众提供一个关于CP的通用概念。

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