Lobchuk Michelle M, McClement Susan E, Daeninck Paul J, Elands Heather
Faculty of Nursing, Helen Glass Center for Nursing, University of Manitoba, Manitoba, Canada.
J Pain Symptom Manage. 2007 Apr;33(4):420-33. doi: 10.1016/j.jpainsymman.2006.09.021.
Both conceptual and empirical evidence in the caregiving literature suggest that "how" informal caregivers are prompted to think about patient experiences can impact their ability to achieve perceptual agreement with patients on symptom events. Researchers have begun to test the effects of different clinical questions with caregivers or a proxy on their perceptual agreement with patient self-reports. However, there are gaps in understanding caregivers' underlying thoughts and feelings when they are prompted to take different vantage points on the patient's symptom experiences. To assess these thoughts and feelings, content analysis was performed on verbal responses to an open-ended interview schedule, in which caregivers were questioned about their thoughts and feelings in one of three randomly assigned instructional conditions-neutral, imagine-patient, and imagine-self perspective-taking. Responses were classified into one of five cue categories: patient-oriented, caregiver-oriented, generalized other, feeling distanced, and other. Caregivers tended to respond to patient symptom experiences in ways that suggest it is innate for caregivers in intimate relationships to make an effort to imagine the patient's viewpoint on symptom events. When caregivers were prompted to imagine the patient's perspective, "labeling" processes were also triggered that denote a categorization process in which caregivers interpreted the meaning of simple patient information arising in the care situation. A large portion of caregivers in the neutral and imagine-patient conditions reported feeling distanced from patients in light of perceived communication difficulties.
照护文献中的概念性和实证性证据均表明,非正式照护者“如何”被引导去思考患者的经历,会影响他们在症状事件上与患者达成认知一致的能力。研究人员已开始测试不同临床问题对照护者或代理人与患者自我报告之间认知一致性的影响。然而,当照护者被引导从不同视角看待患者的症状经历时,对于他们潜在的想法和感受,我们的理解还存在差距。为了评估这些想法和感受,我们对一份开放式访谈提纲的口头回答进行了内容分析,在该提纲中,照护者被问及在三种随机分配的指导条件之一(中立、想象患者和想象自我视角采择)下的想法和感受。回答被归类为五个线索类别之一:以患者为导向、以照护者为导向、一般他人、感到疏远和其他。照护者倾向于以这样的方式回应患者的症状经历,即表明在亲密关系中的照护者努力想象患者对症状事件的观点是与生俱来的。当照护者被引导去想象患者的视角时,也会触发“标记”过程,这表示一种分类过程,即照护者解释在照护情境中出现的简单患者信息的含义。在中立和想象患者条件下,很大一部分照护者报告称,由于感知到沟通困难,他们感觉与患者有距离。