Bengtsson Mariette, Ohlsson Bodil, Ulander Kerstin
Division of Gastroenterology and Hepatology, Department of Medicine, Malmö University Hospital, Malmö, Sweden.
Gastroenterol Nurs. 2007 Mar-Apr;30(2):74-82. doi: 10.1097/01.SGA.0000267924.24180.1a.
Irritable bowel syndrome has a negative impact on a person's quality of life, but only a few existing studies have been based on patients' own perceptions. This study therefore aimed to collect information on the view of female patients with irritable bowel syndrome regarding what constitutes a good quality of life for them and to create a healthcare model for these patients. For the study, 30 women with irritable bowel syndrome (median age, 38.5 years; range, 20-65 years) responded in writing to a single, all-inclusive question: "What is your perception of a good quality of life?" When the questionnaires were returned, there was time for a short dialogue, and notes of the conversations were made. Data were analyzed qualitatively according to Burnard's method of thematic content analysis. The answers also were counted and thereby quantified. The women's perception of a good quality of life could be divided into five categories: (a) physical and mental health, (b) social well-being, (c) welfare, (d) strength and energy, and (e) self-fulfillment. According to the results, a healthcare model for patients with irritable bowel syndrome should include four main areas: (a) treatment of the patient's symptoms, (b) confirmation of the patient, (c) confirmation of the diagnosis, and (d) instruction for the patient. The healthcare model should be focused on the primary care level and should include a longitudinal plan of healthcare that also describes the secondary care level.
肠易激综合征会对人的生活质量产生负面影响，但现有的研究中只有少数是基于患者自身的认知。因此，本研究旨在收集有关肠易激综合征女性患者对于她们而言何为良好生活质量的看法的信息，并为这些患者创建一种医疗保健模式。在该研究中，30名肠易激综合征女性患者（年龄中位数为38.5岁；范围为20 - 65岁）以书面形式回答了一个全面的问题：“你对良好生活质量的认知是什么？”问卷返回后，会有一段简短的对话时间，并记录对话内容。根据伯纳特的主题内容分析方法对数据进行定性分析。答案也进行了计数并从而实现了量化。女性患者对良好生活质量的认知可分为五类：（a）身心健康，（b）社会福祉，（c）福利，（d）力量与精力，以及（e）自我实现。根据研究结果，肠易激综合征患者的医疗保健模式应包括四个主要方面：（a）治疗患者的症状，（b）确认患者，（c）确认诊断，以及（d）对患者进行指导。该医疗保健模式应聚焦于初级保健层面，并应包括一份纵向医疗保健计划，该计划也应描述二级保健层面。
