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有症状子宫肌瘤女性寻求创新替代治疗途径中的信息获取行为。

Information-seeking behavior of women in their path to an innovative alternate treatment for symptomatic uterine fibroids.

作者信息

Ankem Kalyani

机构信息

School of Library and Information Sciences, North Carolina Central University, Durham, North Carolina 27707, USA.

出版信息

J Med Libr Assoc. 2007 Apr;95(2):164-72, e51-3. doi: 10.3163/1536-5050.95.2.164.

Abstract

OBJECTIVES

The purpose of the study was to discover how women found out about uterine fibroid embolization (UFE) for the treatment of symptomatic uterine fibroids.

METHODS

The study retrospectively tracked women from the beginning of their illnesses and analyzed their information-seeking behaviors. Twenty-eight women who had the procedure at the Detroit Medical Center were interviewed using a standard script. Median values and frequencies were calculated to represent information needs, information sources, and perceived helpfulness. Spearman correlations were calculated to find relationships between demographics and information needs.

RESULTS

Although the women expressed a great need for almost all types of information (median = 5), those with higher levels of education indicated a greater need to know the reasons that their doctors had for suggesting treatments (r = 0.55). The gathered frequencies indicated that friends, magazines, television, and the Internet were important information sources. A preliminary model of information seeking showed that while friends, magazines, and television made several of the women aware of the new procedure, the Internet was heavily utilized for learning about treatment options.

CONCLUSIONS

Health sciences librarians may inform women about their health and treatment options by guiding women to easily readable, authoritative, and reliable information sources, including Web information sites.

摘要

目的

本研究旨在探究女性如何了解用于治疗有症状子宫肌瘤的子宫纤维瘤栓塞术(UFE)。

方法

该研究从疾病初发开始对女性进行回顾性跟踪,并分析她们的信息寻求行为。使用标准脚本对在底特律医疗中心接受该手术的28名女性进行了访谈。计算中位数和频率以代表信息需求、信息来源和感知的有用性。计算斯皮尔曼相关性以找出人口统计学与信息需求之间的关系。

结果

尽管女性对几乎所有类型的信息都有很大需求(中位数 = 5),但受教育程度较高的女性表示更需要了解医生建议治疗的原因(r = 0.55)。收集到的频率表明,朋友、杂志、电视和互联网是重要的信息来源。一个信息寻求的初步模型显示,虽然朋友、杂志和电视让一些女性知晓了这种新手术,但互联网被大量用于了解治疗选择。

结论

健康科学图书馆员可以通过引导女性获取易于阅读、权威且可靠的信息来源,包括网络信息站点,来向女性告知她们的健康状况和治疗选择。

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