Ito Hijiri, Izumi Yuishin
Dept. of Neurology, Medical-Corporation Mifukai Vi-Hara Hananosato Hospital.
Gan To Kagaku Ryoho. 2006 Dec;33 Suppl 2:254-6.
To understand the various problems of medical treatment and home care of ALS patients, we analyzed 23 ALS patients who live in the Bihoku region of Hiroshima prefecture. The ages of patients ranged from 50 to 88 years old. One patient was controlled with mechanical ventilation. The patients and their families utilized available home health care services well. A care manager managed to find appropriate resources for the patients as the disease progressed. Although limited in resources, patients' friends and neighbors offered an informal community support. An early approval of support enabled the patient to initiate home care. The incidence of hospitalization due to social reasons was higher in patients without communication to a care manager or without well cooperative support. Assessments of patient and family needs are important for a development of a community care system. It is also essential for all of the patients to have a good cooperative relationship.
为了解肌萎缩侧索硬化症（ALS）患者的各种医疗和居家护理问题，我们分析了居住在广岛县北部地区的23例ALS患者。患者年龄在50至88岁之间。1例患者采用机械通气控制。患者及其家人很好地利用了现有的居家医疗服务。随着病情进展，护理经理设法为患者找到合适的资源。尽管资源有限，但患者的朋友和邻居提供了非正式的社区支持。早期获得支持使患者能够启动居家护理。在未与护理经理沟通或未获得良好合作支持的患者中，因社会原因住院的发生率更高。评估患者和家庭需求对于社区护理系统的发展很重要。对所有患者来说，建立良好的合作关系也至关重要。
