Lo Iacono Luigi
C&C Research Laboratories, NEC Europe Ltd., Germany.
Stud Health Technol Inform. 2007;126:239-47.
This paper discusses the importance of protecting the privacy of patient data kept in an Electronic Health Record (EHR) in the case, where it leaves the control- and protection-sphere of the health care realm for secondary uses such as clinical or epidemiological research projects, health care research, assessment of treatment quality or economic assessments. The paper focuses on multi-centric studies, where various data sources are linked together using Grid technologies. It introduces a pseudonymisation system which enables a multi-centric universal pseudonymisation, meaning that a patient's identity will result in the same pseudonym, regardless of which participating study center the patient data is collected.
本文讨论了在电子健康记录(EHR)中保存的患者数据用于诸如临床或流行病学研究项目、医疗保健研究、治疗质量评估或经济评估等二次用途,从而离开医疗保健领域的控制和保护范围的情况下,保护患者数据隐私的重要性。本文重点关注多中心研究,即在多中心研究中,使用网格技术将各种数据源链接在一起。它引入了一种假名化系统,该系统能够实现多中心通用假名化,这意味着无论患者数据是在哪个参与研究中心收集的,患者的身份都会产生相同的假名。