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抽动秽语综合征的影响:关于披露病情对同伴认知和社交功能影响的初步调查。

Impact of Tourette Syndrome: a preliminary investigation of the effects of disclosure on peer perceptions and social functioning.

作者信息

Marcks Brook A, Berlin Kristoffer S, Woods Douglas W, Davies W Hobart

机构信息

University of Wisconsin-Milwaukee, Milwaukee, Wisconsin, USA.

出版信息

Psychiatry. 2007 Spring;70(1):59-67. doi: 10.1521/psyc.2007.70.1.59.

Abstract

Individuals with Tourette Syndrome (TS) often experience social difficulties, which may be caused or compounded by others' negative perceptions of persons with the disorder. As a result, researchers and clinicians have called for the development of attitude change strategies. One such strategy is preventative disclosure, in which one informs others about his or her condition. To date, no known research exists exploring the effects of this type of disclosure with TS. In an attempt to examine the effects of TS disclosure, adults (N = 369) read vignettes that varied in a 2 (male vs. female character) x 2 (preventative disclosure of disorder vs. nondisclosure) design. Respondents answered several questions regarding the character presented in the vignette, which when factor-analyzed, resulted in four factors (social rejection, attributions of a drug/alcohol problem, perceptions of psychological/medical problems, and general concern). The results of this preliminary study are promising, in that the data suggest that preventative disclosure of TS may reduce social rejection, minimize concern, and decrease perceptions of drug and alcohol problems. No effect of character gender was found. Implications of these findings, limitations to the current study, and directions for future research are discussed.

摘要

患有妥瑞氏症(TS)的个体常常会经历社交困难,这可能是由他人对患有该疾病者的负面看法所导致或加剧的。因此,研究人员和临床医生呼吁制定态度转变策略。其中一种策略是预防性披露,即告知他人自己的病情。迄今为止,尚无已知研究探讨这种披露方式对妥瑞氏症的影响。为了检验妥瑞氏症披露的效果,成年人(N = 369)阅读了采用2(男性角色与女性角色)×2(预防性披露病情与不披露)设计的短文。受访者回答了几个关于短文中人物的问题,经因素分析后得出四个因素(社会排斥、药物/酒精问题归因、心理/医学问题认知以及总体关注)。这项初步研究的结果很有前景,因为数据表明,预防性披露妥瑞氏症可能会减少社会排斥、降低关注程度,并减少对药物和酒精问题的认知。未发现人物性别产生影响。讨论了这些发现的意义、当前研究的局限性以及未来研究的方向。

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