De Judicibus Margaret A, McCabe Marita P
School of Psychology, Deakin University, Victoria, Australia.
Int J Behav Med. 2007;14(1):3-11. doi: 10.1007/BF02999222.
This study examined the financial costs of multiple sclerosis (MS) and the impact of financial strain on the subjective quality of life of people with MS and their families. Due to the lack of research in this area, a qualitative research design was employed. Interviews were conducted with 16 health professionals, 26 people with MS, and 11 family members of people who had MS. Adjusting to actual or threatened loss of income caused financial stress. These financial struggles led to a lower quality of life among respondents. Problem solving, coping, and positive reappraisal helped people to adjust to financial changes. Professionals focused on increased funding for services, whereas people with MS focused on improved income support. These findings highlight the need for professionals to consider the financial strain associated with this disease and the impact of this strain on the quality of life of individuals with MS and their families.
本研究调查了多发性硬化症（MS）的经济成本，以及经济压力对MS患者及其家庭主观生活质量的影响。由于该领域缺乏研究，因此采用了定性研究设计。对16名健康专业人员、26名MS患者以及11名MS患者的家庭成员进行了访谈。适应实际的或预期的收入损失会造成经济压力。这些经济困境导致受访者的生活质量下降。解决问题、应对和积极重新评估有助于人们适应经济变化。专业人员关注增加服务资金，而MS患者则关注改善收入支持。这些发现凸显了专业人员需要考虑与这种疾病相关的经济压力，以及这种压力对MS患者及其家庭生活质量的影响。
