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多发性硬化症患者在两年期间生活质量和应对方式的变化。

Changes in quality of life and coping among people with multiple sclerosis over a 2 year period.

作者信息

McCabe Marita P, Stokes Mark, McDonald Elizabeth

机构信息

School of Psychology, Deakin University, Melbourne, Australia.

出版信息

Psychol Health Med. 2009 Jan;14(1):86-96. doi: 10.1080/13548500802017682.

DOI:10.1080/13548500802017682
PMID:19085315
Abstract

There is a need to investigate the impact of different coping strategies on quality of life (QOL) of people with multiple sclerosis (MS), in order to better inform intervention programs for this population. This study evaluated the relationship between QOL and coping over a 2 year period among people with MS. Participants were 382 people with MS (144 male, 238 females) and 291 people without a neurological or other chronic illness from the general population (101 males, 190 females). People with MS experienced lower QOL than the control group in the domains of global QOL, independence, social and spiritual QOL scales, as well as the problem solving and social/emotional support coping scales. Interestingly, people with MS experienced higher psychological QOL than the general population, and higher detachment and focusing on the positive coping. Over time, people with MS demonstrated increases in their global QOL as well as in their social/emotional support coping. Women demonstrated higher levels than men of global QOL and Social/emotional support coping. The results of these findings have implications for information and intervention programs for people with MS.

摘要

有必要研究不同应对策略对多发性硬化症(MS)患者生活质量(QOL)的影响,以便为针对这一人群的干预项目提供更充分的信息。本研究评估了MS患者在两年时间里生活质量与应对方式之间的关系。参与者包括382名MS患者(144名男性,238名女性)以及291名来自普通人群、无神经或其他慢性疾病的人(101名男性,190名女性)。在总体生活质量、独立性、社会和精神生活质量量表以及解决问题和社会/情感支持应对量表等方面,MS患者的生活质量低于对照组。有趣的是,MS患者的心理生活质量高于普通人群,且在超脱和关注积极应对方面得分更高。随着时间的推移,MS患者的总体生活质量以及社会/情感支持应对能力有所提高。女性在总体生活质量和社会/情感支持应对方面的水平高于男性。这些研究结果对MS患者的信息和干预项目具有启示意义。

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