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临终对话:在俄勒冈州支持那些考虑尊严死的患者所面临的挑战。

Conversations at the end of life:the challenge to support patients who consider death with dignity in Oregon.

作者信息

Miller Pamela J, Hedlund Susan C, Soule Ann B

机构信息

Graduate School of Social Work, Portland State University, Portland, OR 97207, USA.

出版信息

J Soc Work End Life Palliat Care. 2006;2(2):25-43. doi: 10.1300/J457v02n02_03.

DOI:10.1300/J457v02n02_03
PMID:17513277
Abstract

Oregon's Death with Dignity Act (ODWDA) has been in effect for eight years. The United States Supreme Court recently decided that Oregon's law did not violate the Controlled Substances Act. Other states may consider a law similar to Oregon's through legislative process or ballot measures. Although social work is not mentioned in the law, our profession interfaces with the terminally ill, particularly in hospice. Eighty-seven percent of those who have used the law were enrolled in a hospice program. As a pilot project, this article explores conversations that the authors have had with patients, families, team members and health systems in hospices and oncology settings under Oregon's unique environment. The following four themes emerged from these conversations: (1) mental health, education, choice; (2) team concerns; (3) family issues; and (4) values, ethics, restricted conversations and professional struggles.

摘要

俄勒冈州的《尊严死亡法案》(ODWDA)已实施八年。美国最高法院最近裁定,俄勒冈州的法律并未违反《管制物质法》。其他州可能会通过立法程序或投票措施来考虑制定类似俄勒冈州的法律。尽管该法律未提及社会工作,但我们这个职业与绝症患者有接触,尤其是在临终关怀领域。使用该法律的人中有87%参加了临终关怀项目。作为一个试点项目,本文探讨了作者在俄勒冈州独特环境下,与临终关怀机构和肿瘤治疗机构中的患者、家属、团队成员及医疗系统进行的对话。这些对话中出现了以下四个主题:(1)心理健康、教育、选择;(2)团队关切;(3)家庭问题;(4)价值观、伦理、受限对话及职业困境。

相似文献

1
Conversations at the end of life:the challenge to support patients who consider death with dignity in Oregon.临终对话:在俄勒冈州支持那些考虑尊严死的患者所面临的挑战。
J Soc Work End Life Palliat Care. 2006;2(2):25-43. doi: 10.1300/J457v02n02_03.
2
What their terms of living and dying might be: hospice social workers discuss Oregon's Death with Dignity Act.他们的生死条件可能是什么:临终关怀社会工作者讨论俄勒冈州的尊严死亡法案。
J Soc Work End Life Palliat Care. 2012;8(3):249-64. doi: 10.1080/15524256.2012.708295.
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"We just happen to live here": two social workers share their stories about Oregon's Death with Dignity Law.“我们只是恰好住在这里”:两位社会工作者分享他们关于俄勒冈州尊严死亡法的故事。
J Soc Work End Life Palliat Care. 2005;1(1):71-86. doi: 10.1300/J457v01n01_05.
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Oregon's guidelines for physician-assisted suicide: a legal and ethical analysis.俄勒冈州医生协助自杀指南:法律与伦理分析
Univ Pittsbg Law Rev. 2000 Winter;61(2):329-65.
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Hospice-assisted death? A study of Oregon hospices on death with dignity.临终关怀辅助死亡?一项关于俄勒冈州临终关怀机构尊严死的研究。
Am J Hosp Palliat Care. 2012 May;29(3):227-35. doi: 10.1177/1049909111418637. Epub 2011 Aug 25.
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Reassessing Oregon's Death With Dignity Act.重新评估俄勒冈州尊严死亡法案。
Caring. 1997 Nov;16(11):34-6, 38.
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Care at the end of life: Oregon's Death with Dignity Act.临终关怀:俄勒冈州尊严死亡法案。
Continuum. 1998 Sep-Oct;18(5):7-13.
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Experiences of Oregon nurses and social workers with hospice patients who requested assistance with suicide.俄勒冈州护士和社会工作者与请求协助自杀的临终关怀患者打交道的经历。
N Engl J Med. 2002 Aug 22;347(8):582-8. doi: 10.1056/NEJMsa020562.
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Hospice and assisted suicide: the structure and process of an inherent dilemma.
Death Stud. 2000 Mar;24(2):135-55. doi: 10.1080/074811800200612.
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In the laboratory of the states: the progress of Glucksberg's invitation to states to address end-of-life choice.在各州的实验室里:格鲁克斯伯格邀请各州探讨临终选择的进展情况。
Mich Law Rev. 2008 Jun;106(8):1593-612.

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