Lutz Barbara J, Chumbler Neale R, Roland Kate
College of Nursing, University of Florida, Gainesville, Florida, USA.
Top Stroke Rehabil. 2007 Mar-Apr;14(2):32-42. doi: 10.1310/tsr1402-32.
Stroke is a life-disrupting, costly event for many stroke patients and their families. An estimated 4.8 million stroke survivors are living in the community with some level of disability, and the incidence of stroke is expected to rise with correspondingly higher costs, both in dollars and other forms of burden for families of patients with stroke. Approximately 80,000 veterans have experienced a stroke, leaving approximately 40% with moderate residual impairments and 15%-30% with severe residual disability.
The purpose of this study was to identify postdischarge needs of veterans with stroke and their caregivers and to identify how to design a care coordination/home-telehealth (CC/HT) program to address these needs.
Veterans and their caregivers (N = 22) were interviewed about their experiences with stroke, their postdischarge stroke recovery needs, and their experiences with the Veterans Administration's existing Care Coordination/Home-Telehealth (CC/HT) program. Data were analyzed using the process of grounded dimensional analysis.
Core concepts identified were (a) assessing and managing the residual effects of stroke, and (b) shifting roles and responsibilities.
The findings suggest that a comprehensive care coordination program that includes home telehealth could aid veterans and their caregivers in managing stroke recovery across the continuum of care at home and within the community. The results of the study can provide elements to be included in the CC/HT program.
中风对许多中风患者及其家庭来说是一件扰乱生活且代价高昂的事情。据估计，有480万中风幸存者生活在社区中，存在一定程度的残疾，而且中风的发病率预计将会上升，这将给中风患者家庭带来相应更高的经济成本以及其他形式的负担。大约8万名退伍军人经历过中风，约40%的人有中度残留损伤，15% - 30%的人有严重的残留残疾。
本研究的目的是确定中风退伍军人及其照顾者出院后的需求，并确定如何设计一个护理协调/家庭远程医疗（CC/HT）项目来满足这些需求。
对退伍军人及其照顾者（N = 22）进行了访谈，了解他们的中风经历、出院后的中风恢复需求以及他们参与退伍军人管理局现有护理协调/家庭远程医疗（CC/HT）项目的经历。使用扎根维度分析过程对数据进行了分析。
确定的核心概念是（a）评估和管理中风的残留影响，以及（b）角色和责任的转变。
研究结果表明，一个包括家庭远程医疗的全面护理协调项目可以帮助退伍军人及其照顾者在家庭和社区的连续护理过程中管理中风恢复。该研究结果可为CC/HT项目提供应包含的要素。
